[carolinarose79]

So after getting my diagnosis everyone in my inner circle says "yay, you have an answer now get off your butt and do something about it " ugh. On top of that I was told that due to being notified of where the boundaries will be when the state decides to widen the highway all of the work on my house has been canceled. So in other words I lost my house. It is gutted and the highway as far as I know is not slated to begin until 2029. But hey the joys of working with family. And no it isn't in my name "yet". Not till my mom passes away. The house and land is left to me in the will. Anyway major flar day and major depression day so please say a prayer that we can find a rental very very soon. Thanks.

[Littlepaw]

Ugh! My God, as if you don't have enough to deal with. I am so, so sorry to hear about your house. The last thing you need is more stress. On the getting out there to do something...be gentle with yourself and take rehab slow. It is really easy in our desire to get better to push too hard and cause flare or injury. You WILL get there, just slow and steady. Keep it moving and tell yourself and your body everything is going to be okay. It may take a while but that is alright. I work on getting better so slowly that my foot sometimes doesn't realize I am making it do a little more all the time. Most importantly, keep plugging away. We all have bad days and down days. Even in the darkest times, just do the best you can and keep going!

I am praying that you will soon find rest and shelter and am sending Healing Love,
Littlepaw

[crpsspoonie12]

Originally Posted by carolinarose79

So after getting my diagnosis everyone in my inner circle says "yay, you have an answer now get off your butt and do something about it " ugh. On top of that I was told that due to being notified of where the boundaries will be when the state decides to widen the highway all of the work on my house has been canceled. So in other words I lost my house. It is gutted and the highway as far as I know is not slated to begin until 2029. But hey the joys of working with family. And no it isn't in my name "yet". Not till my mom passes away. The house and land is left to me in the will. Anyway major flar day and major depression day so please say a prayer that we can find a rental very very soon. Thanks.

I am so sorry Carolina Rose! That sounds awful! I'm definitely sending good thought and prayers your way! As far as people being on your case, what I have found to be helpful is to tell them about your pain in a way that they would understand more. For example, I've told people before that on bad flares my arm feels like the worst sunburn you've ever had that is on fire and every time something touches it it is like rug burn on top of that, or something along those lines. If they still are giving you a hard time, ask them to read up on it a little bit, even show them the pain scale thing ( anyone remember the name of it?) That shows that rsd\ crps is the highest pain on the scale, above cancer pain, and childbirth. Also, you could discribe it as being similar to fibromyalgia but worse, because people know a little bit more about that kind of pain. But overall, it can be very hard for people to understand your pain, try to be patient on that, but also tell people that sometimes you just can't do certain things.

I'm so sorry today is hard for you with everything going on. Maybe a nap might help with some pain relief for a bit? And remember, its okay to not always be okay.

Sending love and understanding

[carolinarose79]

Originally Posted by crpsspoonie12

I am so sorry Carolina Rose! That sounds awful! I'm definitely sending good thought and prayers your way! As far as people being on your case, what I have found to be helpful is to tell them about your pain in a way that they would understand more. For example, I've told people before that on bad flares my arm feels like the worst sunburn you've ever had that is on fire and every time something touches it it is like rug burn on top of that, or something along those lines. If they still are giving you a hard time, ask them to read up on it a little bit, even show them the pain scale thing ( anyone remember the name of it?) That shows that rsd\ crps is the highest pain on the scale, above cancer pain, and childbirth. Also, you could discribe it as being similar to fibromyalgia but worse, because people know a little bit more about that kind of pain. But overall, it can be very hard for people to understand your pain, try to be patient on that, but also tell people that sometimes you just can't do certain things.

I'm so sorry today is hard for you with everything going on. Maybe a nap might help with some pain relief for a bit? And remember, its okay to not always be okay.

Sending love and understanding

I have the mcgill pain scale and have showed them. My mom is a nurse you would think she would get the picture. Anywho. Thanks bunches for the prayers and well wishes. Think I am going to write all of my battles out on individual pieces of paper and stick em in a jar and just pick one at a time to fight.

[Enna70]

Keep up the fight.....