Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-13-2007, 03:12 PM #1
sue k sue k is offline
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Default So Scared, any ideas?

Hi Everyone,

A little history first. I have siatic nerve damage frome a hip replacement. That is how I got Rsd type ll. I have tight foot drop and yesterday I got up and couldn't walk or put weight on my foot. Today isn't any better. My foot has been turning in for a couple of months, but now it seems to be totaly gone. It feels like the bones are not attached. My ankle can not hold up my foot. My leg and foot from the knee down are half the size of the other leg and is very red and purple. Iam afraid to go to the doctors, of what they might say. Does this mean the foot is gone? Does anyone else have this problem? I don't want to loose the foot. The pain is double my normal pain, way past 10. Pain meds not working at all.

Thanks,
Sue K.
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Old 06-13-2007, 03:24 PM #2
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Sue, hon... take yourself immediately to the dr.s!!! It sounds to me like you are causing more damage to yourself by NOT going.You don't want to lose your foot, you say....would you want to find out later that you lost it because you delayed getting treatment?

I have crps type II also, and have gone through the severe atrophy stage, the foot drop too...they are much better now. I had to throw away the ROM boot the dr.s had me wearing, and just get to walking, regardless of the pain. Some days that worked better than others, lol... but I tried a little every day.

But what are you still doing sitting here reading? Go call the Dr.!
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Old 06-13-2007, 03:30 PM #3
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Hi,

You need to go to the hospital. Much Love, Roz
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Old 06-13-2007, 03:43 PM #4
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Hi Again,

They need to rule out a blood clot, this is usually done with a spiral CT Scan. You are in my heart and prayers. Roz xxx


NURSES PLEASE RESPOND
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Old 06-13-2007, 07:03 PM #5
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Thanks you guys,
I can't get into the Docs till tommorow. I bought a foot support brace and its helping a little bit. I'll let you all know what they say.

Love
Sue K.
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Old 06-13-2007, 07:58 PM #6
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Hi Sue,

This may have nothing to do with it at all; you asked for ideas so take a look at this:
http://www.emedicine.com/PMR/topic60.htm
Ischemic Monomelic Neuropathy

Here's a few extracts:

Background: Ischemic monomelic neuropathy (IMN) is an infrequent problem that usually occurs after acute arterial occlusion or low blood flow to an extremity. This condition can occur after surgical procedures (eg, vascular surgery involving the thoracoabdominal aorta and its caudal arterial channels), arteriovenous fistulas for hemodialysis assess, arterial emboli, or thrombi.

* Physical examination of the leg frequently shows decreased sensation in the foot and distal calf. Allodynia and hyperesthesia also may be present. Intrinsic wasting in the feet is usually present. Distal leg muscles also can be weak, including extensor hallucis longus, anterior tibialis, peroneus longus, and gastrocnemius/soleus. Hamstrings, quadriceps, and hip abductors are affected in rare cases. Gait may be abnormal in that the patient may have steppage gait associated with ankle dorsiflexion weakness (foot drop). Reflexes may be asymmetric, especially at the ankle, with an absent Achilles reflex in the affected leg.

* In cases of chronic disuse, contractures of the distal joints (fingers, toes, wrists, or ankles) with swelling, skin atrophy, and vasomotor changes can be present. These conditions can coexist with complex regional pain syndrome (CRPS) type 2 (also known as reflex sympathetic dystrophy [RSD]).

* Patients with chronic IMN most commonly have hypalgesia in their distal foot and toes and/or nonhealing skin ulcers.

Just a thought, I hope someone can help you very soon,
all the best
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Old 06-13-2007, 08:56 PM #7
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Quote:
Originally Posted by sue k View Post
It feels like the bones are not attached.
Sue,

This sounds like the way I described my foot. Almost like the bone were floating around in a bad of fluid with each step. Guess what the doctors found? Exactly that! Erosion had caused giant gaps so the metatarsals were nowhere near the attaching bones. The "fix" was to screw the whole thing back together.

I won't say the surgery was easy, but it was (after the healing) so much better. The surgeon said I could have caused progressive damage.

We can all guess what is going on with your foot, but you DO NEED to get someone to check it out. Even if it is not-so-good news, that's better than being in the dark.

Hugs,

Mike

Last edited by bassman; 06-14-2007 at 08:26 AM. Reason: Typo
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Old 06-13-2007, 10:35 PM #8
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[QUOTE=sue k;112573]Hi Everyone,

A little history first. I have siatic nerve damage frome a hip replacement. That is how I got Rsd type ll. I have tight foot drop and yesterday I got up and couldn't walk or put weight on my foot. Today isn't any better. My foot has been turning in for a couple of months, but now it seems to be totaly gone. It feels like the bones are not attached. My ankle can not hold up my foot. My leg and foot from the knee down are half the size of the other leg and is very red and purple. Iam afraid to go to the doctors, of what they might say. Does this mean the foot is gone? Does anyone else have this problem? I don't want to loose the foot. The pain is double my normal pain, way past 10. Pain meds not working at all.

Thanks,
Hi Sue.. If you can put an indent into your shin bone, then get to the Dr. could be a heart condition(Early warning sign) don't mean to scare you, but please lets rule out anything serious, I am no Doc. by all means, quit walking on it and get someone to drive you to the doc.'s, ER. You say your scared? keep letting it get more swollen, then you will be mad that you didn't get in sooner to have this checked out. My hubby has no feeling on his feet due to diabetes, neuropathy and his foot was so very swollen, they had him in the hospital for a heart attack and then again, another time in the ER on an I.V. over night to get the swelling down. I want you to please get this checked. Love, Desi
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