[Burnbabyburn]

Hi all
Happy Friday, hope everyone is hanging in there. SOFT HUGS. Just curious.

1. How many people on this site/forum have RSD and Celiac Disease?

2. If you have both, which came first, chicken or the egg..lol?

3. When in your life span, was your Celiac diagnosed?

I feel like there is definitely a connection between the two. I have both.

Thanks

[Adalaide]

I have both. Based on my symptoms, I've had celiac since I started solid foods. It only took a meager 34 years to get a diagnosis, which came 1 1/2 years ago now. My CRPS started a bit over 5 years ago and my diagnosis was in March. I have done a bit of reading in which some researchers seem to think that there is an autoimmune/CRPS link. It wouldn't surprise me in the least since celiac is linked to so many things already.

[Burnbabyburn]

Thanks Adalaide

Appreciate your response. I think there is a connection for sure. And I do think RSD has an autoimmune component.

I too was diagnosed very late (which I think could be the connection) possibly. It took them about 38 years to diagnose me. I have had RSD for about 25 years. Interesting.

Have a good day

Originally Posted by Adalaide

I have both. Based on my symptoms, I've had celiac since I started solid foods. It only took a meager 34 years to get a diagnosis, which came 1 1/2 years ago now. My CRPS started a bit over 5 years ago and my diagnosis was in March. I have done a bit of reading in which some researchers seem to think that there is an autoimmune/CRPS link. It wouldn't surprise me in the least since celiac is linked to so many things already.

[Sophiabella]

Originally Posted by Burnbabyburn

Thanks Adalaide

Appreciate your response. I think there is a connection for sure. And I do think RSD has an autoimmune component.

I too was diagnosed very late (which I think could be the connection) possibly. It took them about 38 years to diagnose me. I have had RSD for about 25 years. Interesting.

Have a good day

[SIZE="4"][/SIZE

I have had RSD for about 5 years and over the years its gotten worse full body, ears bad, passing out, seizures, grand mals, confusion, can't remember pass events hard time communicating. Severe depression, anxiety. And ptss. I see great doc in Atlanta, ga. And is doing all he can, is just the docs in Fl. Were not educated enough onRSD. Any words of wisdom

[eevo61]

I unfortunately can provide any information additional of what you already might had but I recently read that a diet free of gluten helps a lots so you can try it and see if you can get some relief ,after all meats are hard to digest by our system and also add pain in your joints ,I'm sure affect is some way so try gluten free and avoid red meat just in case , good luck and wish you well.from Jesika also gentle hugs as well.

[Adalaide]

Please, with those symptoms don't try a gluten free diet without seeing your doctor and having a blood test for celiac disease. Some of those symptoms can be associated, but then they could mean a lot of things. It is a simple blood test, and you can't be tested if you're gluten free already.

[eevo61]

Obviously when I'm saying try to,eat gluten free is because you already know you have celiac diagnosed by a dr and is just in case , everyone is free to decide what's best ,we all try to help.
For all suffering with rsd and celiac ,I'm truly sorry we are dealing if not with only one problem with multiples at the same time ,but we have to keep frighting, never give up,with love Jesika .

Ps.
By the way, I did remember well that quote your closing with Adelaide , is nice Renee and I didn't patent so everyone can use it as they want to,nice ,you are also spreading the words against rsd ignorance !!

[Adalaide]

I have a very twisted sense of humor. I decided I like it enough to steal it. I've had to say similar things to people when I've had them comment on me using the handicapped restroom or other similarly ignorant comments.

[eevo61]

Originally Posted by Adalaide

I have a very twisted sense of humor. I decided I like it enough to steal it. I've had to say similar things to people when I've had them comment on me using the handicapped restroom or other similarly ignorant comments.

I was just kidding but I'm so happy you are a great advocate for rsd and Celiac, always welcome and needed any advise and help,from some one who had long time experience with both conditions ,like I mentioned is so unfortunate to be dealing with more than one condition at the time , rsd alone is a hustle ,hope some relief and medical treatment can be work soon for you and anyone else with both conditions ,wish you the best and also a relief soon,with love Jesika .
I wanted to say rsd is a pain in the butt literally,well between us if you don't know , I had my scs generator in my buttocks but was so painful was removed and repositioned in my abdomen this year but the pain in my butt is still there and stronger so I don't mind any joke about pain in the butt,all applies to me,literally.

Hope we all can get relief in some way soon. Jesika .

[Brambledog]

Hi

It's a subject that's very interesting and relevant given the autoimmune direction in CRPS research at the moment. Both seem to be due to the autoimmune system not working as it should...although quite how and why is still up for serious debate!

I was diagnosed with coeliac disease about 7 years ago, at the age of 35. I'd been ill for a few years with gastro issues, but my GP refused to treat my problems seriously, did the blood tests at the wrong time, etc. Finally got there. I'm mostly used to it now, although my kids still laugh at how I smell the stuff I can't have, like a lovely fatty doughnut...mmm

I got CRPS 4 years ago after a minor knee operation. Since then the fun times have just been never ending. As you all know. Lol.

Good luck all.

Bram.