Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-31-2015, 07:22 AM #1
Always_Believe Always_Believe is offline
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Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Default Vitamin/OTC advice & Ortho update

Trying to weed through all the OTC/Self-help stuff here and everywhere. What I have that helps me so far:
A fuzzy sock on my CRPS foot (the kind that's aloe infused seems to feel the best)
I've been trying a heating pad to my foot/ankle/leg for flares but thankfully I haven't had a "bad" flare since getting the heating pad.
Melatonin (3mg) about 30-45 min before bedtime for sleep.
I use a contraption (walker) or my daughter or walls/furniture to get from here to there

I have read a lot about Vitamin C and Epsom salts but I am a bit confused about when/how best to use their healing/helpful properties. I know Vit C before & after procedures, but what about on an every day basis? And the Epsom salts...I don't have anything tall enough to submerge my leg from foot to knee. I do have one of those foot spa's my son got me for Christmas years ago...would just soaking the foot help? And when I'm flaring, any touch is OMG, so how would the lotion help if it hurts so much to put it on?

Ortho visit yesterday was 'meh'. The most helpful thing was when I was explaining my pain, he said "That's the RSD." HE GETS IT!!!! He also said I need to use the walker at all times. He reminded me I need to be aware of increased pain and that it might be associated with compression fractures. He mentioned the possibility of Foreto. He told me he was sorry but he did not have a "magic silver bullet" (which I suppose is a good thing since I'm not a werewolf). When he asked if there was anything else, I asked him for a saw...he said "That's really not funny."
I left with an Rx for Vit D and a referral for pain management. Now to get my PCP to refer me to pain management...
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