NeuroTalk Support Groups - Can't catch a break...

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Can't catch a break... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/218046-cant-catch-break.html)

Quote:

Originally Posted by catra121 (Post 1132614)

Thanks everyone. Still having a rough time...hoping the visit with the dr goes well on Monday. This extra pain is really taking a toll on me...

Let us know what the doc says....it might just not only help you but others here. Sorry, about the extra pain.....:hug:

Saw the dr today...looks like the cyst twisted and ruptured and that's why it's so painful. Dr said that it will take about 2 weeks for the pain to go away but that it should feel a lot better in about a week. she loaded me up with more pain meds and told me to rest for a week (ie...no working). I'm pretty bummed by the whole thing. This extra pain is really sucking all the energy out of me. At least I have my little princess to make me smile whenever I start to feel too low. I'm usually pretty good at staying positive and energetic even when I have bad flares...but this little episode has really just taken a toll on me.

Well, that's a relief that it should get better very soon.

And while I know you miss work, it's a good time to be playing hookie. They grow so fast and change so much that first year, it's amazing. Enjoy every moment.

BTW, have you thought about starting a Mommy and Me swimming class with her as soon as she's old enough?

Oh Catra!
You have every right to vent and NO need to apologize!!!! After having lost the pregnancy myself I believe due to complications from the medications I took for CRPS I can imagine your stress and worry. I sincerely hope and pray that everything will work out as beautifully and wonderfully as possible . I hope that with your pregnancy you're CRPS is pushed into remission if not just during but I pray forever.

Regardless of what happens with your CRPS I'm sure you will be blessed with such a beautiful baby. Please make sure to love that baby extra hard for me to. I know how scary it is to find out you're pregnant when you're dealing with this condition. But I know you're strong enough to handle it and to bring a beautiful child in this world. ANYTIME you need to talk, ANYTIME you need a shoulder or a friend, ANYTIME you need to vent or someone to yel at??! I'm here! Pregnancy is hard enough to deal with on its own but so magical I couldn't imagine going through a full pregnancy and dealing with my CRPS . Just remember you are an extremely powerfully strong wonderful woman for wanting to bring this child into the world well dealing with what we deal with . My heart and prayers are with you daily stay strong and give that kid all the love you can!!

You may not have caught a break yet..... But when not babies born even with all the work and tell I heard medicine pain you will get the biggest break at the mall that love that singular powerful undescribable bond of love between a mother and child. That's the biggest break of all! Endless love.....

You have all my prayers, love, and blessings for a healthy, beautiful bab, with an easy, near as can be painless delivery!
Emma

Quote:

Originally Posted by catra121 (Post 1132275)

Sometimes I just feel like I can't catch a break. My biggest fear with my pregnancy last year was that I would need a c section and then have spread of my rsd internally to my abdomen...and that's exactly what happened. But I've been doing pretty well dealing with the extra pain...all I have to do is look at my beautiful smiley happy baby and it's all worth it.

Monday night at work I started to get really bad pain in my abdomen...much more severe than the RSD pain usually is and different pain...stabbing instead of burning. I almost went straight to the ER on my way home from work but talked myself out of it thinking it was probably just a flare up. Next day I start bleeding but it stops quickly so I hold off on going to the dr. Wednesday morning I have more bleeding so I go to the dr for walk in hours. Basically...they give me antibiotics and tell me if any more bleeding or worse pain to go to the ER because they will be able to do the imaging and get results right away. So yesterday I start bleeding again at work so at the end of my shift I go to the ER (its 11pm at this point).

Yeah...they find a 4.5 cm ovarian cyst that is causing this pain. Good news is that the cyst is probably nothing to worry about and will go away on its own (still have to folww q1qlow up on it though). Bad news is...its incredibly painful. They gave me two doses of morphine at the hospital. I have to say...I don't take anything for my RSD pain because nothing helps so I usually don't take pain meds even at the hospital when they offer...but the nurse and dr sort of insisted I take something (this was before they even did any tests) so I gave in. Holy cow...I did not realize how bad the pain had gotten from this cyst until the pain went away. My RSD pain was still there...but just having the stabbing pain go away was such a huge relief. They gave me a script for Norco anD I'm taking it...I just can't deal with the extra pain anymore on top of the RSD.

But seriously...an ovarian cyst? WHY am I such a wreck? I have the next few days off of work and I'm just going to rest. I follow up with the OB dr Monday...hopefully things just improve on their own and this really is just nothing except a painful little blip in my life. But...ugh!!

Just needed a little vent...

I've definitely thought about the mommy and me swim classes when she's a little older. So far she seems like a little water baby...loves her baths...so I think that would be fun and also good for me. I can't wait for the warm weather so we can try one of those shaded baby pools in the yard.

Having the little one is such a blessing...but it's SO HARD when I feel like I can't hold her as much as I want or play with her as much as I want...especially with this new stuff going on. I'm sure the week will go by quickly...but it already feels like it's taking forever.

Quote:

Originally Posted by catra121 (Post 1132993)

My last post was a little weird but I use voice texting and it apparently used words I didn't want it to. Some are so off I'm not sure what I was actually trying to say!!!! Lol

Hi Catra,

Glad that's over with, now you can just recover! The rupture may actually be some weirdly good news. I have had cysts that resolved on their own and I had one years ago that ruptured. There is definitely a difference in the pain! It was intensely, intensely painful with the rupture. Your pain level with a regular cyst seemed kinda high, but I thought maybe it was the CRPS or central sensitivity making it worse. The fact that CRPS was NOT making an acute pain incidence overly high seems like good news as far as your nervous system is concerned. The other good news. Rupture is rare, I never had one do that again. You will heal beautifully over your week of hooky and hopefully this will be then end of it. No needle aspiration or going on for months and months, yeah!

Enjoy that baby this week! I am sending Healing Love, Littlepaw :hug:

Quote:

Originally Posted by Littlepaw (Post 1133171)

I was actually a little relieved to hear that it was a rupture to be honest. I am always relieved when I hear that there is a CAUSE behind any pain that I have (no matter how bad) and that it is NOT the CRPS (which means it will go away). I was so worried I was going to go to the ER last week and be told they couldn't find anything...that it was just a flare up of my RSD and there's nothing else wrong with me. I KNEW this felt different and it was a relief to have that confirmed.

The pain is still pretty bad but it is getting better. I've been able to reduce the pain meds a little (go longer between doses) and am hopeful that it will just continue to improve over the course of the week. I still have to be careful not to overdo it...movement of any kind seems to aggravate the pain and only the meds and warm baths seem to help the pain...but any excuse to take more warm baths is fine with me as that helps with the CRPS pain too. :)

Will continue to rest and take it easy so that I am ready to return to work on Monday.

I am so glad your pain is getting better. Mine took about a week to ten days. Careful lifting! You don't want it to keep bleeding during the fragile part of healing.

I'm glad too that you didn't take my post the wrong way. I was afraid you were gonna think I was just a "B" because I was happy your cyst ruptured. I't sure good to know something that hurts that bad has a cause and is going to heal though. :)

Littlepaw

Hi catra

Im sorry you were doing so well and ur back to this. Pm me. I need to ask questions.