NeuroTalk Support Groups - New diagnosis of CRPS (RSD)

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - New diagnosis of CRPS (RSD) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/218059-diagnosis-crps-rsd.html)

Went to pain doc Friday. Since the shot did not work we are going to go full bore on meds... Percocet for when things get to painful, and trying celebrex and lyrica to control the arthritis and nerves. He said between the arthritis pain and the crps he isnt sure what is casing most of the pain.and it has spread I to my ane as well.

Also since the shot did not work he said it is not rsd but crps..ia he correct in saying that? Or could the shot just not have worked?

Brandon,

I've not encountered a difference in those terms in any literature I have looked at. CRPS has superseded RSD as the "nome du jour". He must just mean that it is not sympathetically mediated pain if the shot didn't touch it or work beyond the hours of the analgesic they used. But you CAN have CRPS without sympathetically mediated pain from everything I have read. Which is kind of a ridiculous number of academic articles at this point :rolleyes:

That said, for sure treat your bone issues! Any underlying pain contributor could be amplifying the whole picture or even have a role in causation.

Good luck on the new meds :hug:

Quote:

Originally Posted by brandon_willis (Post 1132335)

So after 2 surgeries, and lots of pain, I a referral from my podiatrist got me to pain management doc. He says I have CRPS RSD or whatever it's called.

I understand from looking around it must be in early stages still, I don't have some of the more extreme swollen foot leg issues etc. But as the day goes by I have horrid pain swelling etc in my foot. Hard to take off shoes, socks, hurts to lay foot on bed certain ways, sheets blanket or dogs rub in it hurt.

He has scheduled me for a sympathetic lumbar nerve block to see if it helps, as I understand to see which type it is.

So any help with any information would be very helpful!

Also is it normal for it to not always hurt? Mine seems to be not as bad I'd I just don't walk... Lol yeah that's helpful for weight loss too!

Hello Brandon
Ive had for a few years and yes its gonna hurt sme days less than other days of course but it will remain..as times goes on you will understand your body's response to CRSD..my first nerve block lasted about a week-so i had second and only lasted 2/3 days so my doctor said my risk was to high for only 2/3days so we stopped-so i hope you have a better success than me-so good luck

Hey Brandon, welcome, hope you doing better, and the meds are working, how is lyrica? It is kicking my butt, just started it myself, and I am a complete zombie...
:hug:

Nerve Injury/Nerve Compression - Little Paw

Little Paw
Where will find the forum or responses on Nerve Injury and Nerve Compression. My latest doctor is leaning toward this as a diagnosis rather than CRPS based on my symptoms. I will be going for EMG later this month but was looking for more resources.

Quote:

Originally Posted by goblue1998 (Post 1141051)

Hi Blue,

Just scroll down the threads, right now it's 3 pages in. Last entry 4/23 by Enna. title is Nerve Injury Resources. That website for Washinton University has a link for doctors to technical info and surgical training.

Good luck! Littlepaw :hug: