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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-03-2015, 12:12 PM #1
CRPSsurvivor CRPSsurvivor is offline
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I finally have some pain relief, thanks to an SCS. However, I am still having sleep problems. I have noticed that less sleep equals more pain. More pain equals higher stimulation, which equals less sleep. I really hate this circle. Does anyone have any tips?? I really don't want to send myself into a manic, and trigger my PTSD...
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Old 04-03-2015, 12:52 PM #2
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Oh sweetie how awful...and yes, I've been there....I don't know what I can share because nothing was working for me and I was on edge ready to kaboom at any moment....but since I've been taking LDN, it helps me rest..I'm not that far into it to give a full thumbs up or not....It hasn't taken most of the CRPS pain away either...
How I can relate to what you are saying....words escape me of how I was.
Keep up the fight my friend...I'm cheering for you....
Last edited by Enna70; 04-03-2015 at 12:54 PM. Reason: punctuation
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Old 04-03-2015, 02:24 PM #3
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Hi Survivor,
I'm sorry to read about your vicious cycle you're going through.
This might seem simple and may not help but when I'm having trouble relaxing I listen to some soothing music. I have a friend, Carlos Nikai, who has cd's of different native flute songs or some classical music which works for me. Told you it'll sound simple!
What the hey, give it a try....
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okska'sssini ómahkapi'si
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Last edited by Russell; 04-04-2015 at 10:25 AM.
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Old 04-03-2015, 06:26 PM #4
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I don't think it simple; you actually sparked something that I do besides medication....if I can just get distracted for a little while, a computer card game, for a few minutes some times it's all I need to focus again....
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Old 04-03-2015, 07:09 PM #5
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Thanks, I really hope the cycle breaks tonight. Who knows, it might happen. I'll try music and some more relaxation techniques. Keeping my fingers crossed... to you both
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Old 04-04-2015, 09:38 AM #6
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Quote:
Originally Posted by CRPSsurvivor View Post
Thanks, I really hope the cycle breaks tonight. Who knows, it might happen. I'll try music and some more relaxation techniques. Keeping my fingers crossed... to you both
Hey, here's hoping you had a little break from the monster inside us all...I really sympathize....
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