Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-05-2015, 06:59 PM #1
shimmysho shimmysho is offline
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Join Date: Apr 2015
Location: Asheville, NC
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shimmysho shimmysho is offline
Newly Joined
 
Join Date: Apr 2015
Location: Asheville, NC
Posts: 2
10 yr Member
Default scs recommended for relatively mild crps?

September 2013 I was injured at work -- a bad bone bruise on my left shin. Within 6-8 weeks burning, tingling etc started developing. By December of 2013 I was on crutches -- unable to put any weight on it at all or even touch due to hypersensitivity.
January 2014 crps was mentioned as a possibility for the first time but it wasn't until September 2014 that I was able to be seen by a Dr who is actually trained in dealing with this and I was "officially" diagnosed in Nov 2014.
I've done lots of physical therapy, meds, multiple sympathic nerve blocks and am doing loads better than I was. By Febuary 2015 I was doing so well I asked for my work restrictions to be changed from 4 hours a day (with limited walking/standing) to 6 hours a day (resting for 15 minutes every hour).
At this point it's starting to flare up again. Discoloration, swelling, burning/tingling has come back. I'm taking nerontin and we've increased the dosage but don't need pain meds.
I'm continuing with the same work restrictions -- the benefit of doing close to my usual job/routine still outweigh the physical discomfort. My doctor doesn't want to do another sympathic nerve block unless the pain becomes unbearable but is continuing to push the scs as the best treatment.
I've read that it's better to have the stimulator implanted before you get to really hardcore levels of pain -- that it's more effective?
Dr's goal is getting a "normal" life back --- able to work/play with my kids etc.
Looking for any feedback -- I know people who have had scs but their situations were vastly different than mine
Thanks
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