Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-06-2015, 10:53 PM #1
carolinarose79 carolinarose79 is offline
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Default At a lose..... HELP!!!!

Good evening all,
I had to have a follow-up with the pain clinic due to the new meds not helping with my pain very much, but they started me on a low dose so figured this would happen. Anyway they thought that 15mg of MS-CONTIN was going to last me 24 hrs. Ha! Yea right. I take it at 8pm due to having to be able to take care of my 20 month old during the day. it would take the edge of slightly and of course make me sleepy but by 9 am I'm right back to severe pain and by 1-3pm am in tears I'm hurting so bad. So after I tell them this they bump it up to 30mg of MS-CONTIN at night and wrote for 15 5mg/325mg hydrocodone that I am supposed to take for pain during the day and that 15 pills is supposed to last a month. OMG WTH obviously these people don't know what they are dealing with and I am requesting transfer of my case to specialists at UNC Chapel Hill.

In the meantime I was written to be on forearm crutches for mobility and stability. Get ready for another monkey wrench. I have to have so called bariatric forearm crutches because I exceed the standard weight limits by a few pounds. again I say OMG! Not one of the medical supply places within an hour and a halfs drive from me has them or can get them. WHAT!? Yea now what do I do? They are completely covered by my insurance if a place can get them, otherwise they are $160-$260 a pair. I have no income right now. Disability is in the works but it's a slow process. I have been looking at second hand places with no luck. Any suggestions?

Last edited by carolinarose79; 04-06-2015 at 11:09 PM.
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Old 04-07-2015, 08:23 AM #2
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Can you get them through an online medical supply company? I have ordered medical equipment through some before with an Rx and insurance paid for it.
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Old 04-07-2015, 10:39 AM #3
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sorry for what you are going through...maybe you can get them to order it from online too....dunno....some thrift stores carry some things....if you don't mind that...I got a blow up boot for like cents.....worth looking into....again sorry....
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Old 04-10-2015, 09:58 AM #4
Jerie Jerie is offline
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Quote:
Originally Posted by carolinarose79 View Post
Good evening all,
I have no income right now. Disability is in the works but it's a slow process. I have been looking at second hand places with no luck. Any suggestions?
Rent a pair at your local medical supply or pharmacy until you get the paperwork squared away.
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Old 04-10-2015, 10:04 AM #5
carolinarose79 carolinarose79 is offline
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Originally Posted by Jerie View Post
Rent a pair at your local medical supply or pharmacy until you get the paperwork squared away.
I can't rent, no one carries what I need. I unfortunately exceed the weight limit of what everyone has or can get. That is the nightmare I am having. I found some that would work but my insurance doesn't cover out of state medical equipment. Yay. But thanks for the suggestion.
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Old 04-17-2015, 04:26 PM #6
spiritscript spiritscript is offline
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Quote:
Originally Posted by carolinarose79 View Post
Good evening all,
I had to have a follow-up with the pain clinic due to the new meds not helping with my pain very much, but they started me on a low dose so figured this would happen. Anyway they thought that 15mg of MS-CONTIN was going to last me 24 hrs. Ha! Yea right. I take it at 8pm due to having to be able to take care of my 20 month old during the day. it would take the edge of slightly and of course make me sleepy but by 9 am I'm right back to severe pain and by 1-3pm am in tears I'm hurting so bad. So after I tell them this they bump it up to 30mg of MS-CONTIN at night and wrote for 15 5mg/325mg hydrocodone that I am supposed to take for pain during the day and that 15 pills is supposed to last a month. OMG WTH obviously these people don't know what they are dealing with and I am requesting transfer of my case to specialists at UNC Chapel Hill.

In the meantime I was written to be on forearm crutches for mobility and stability. Get ready for another monkey wrench. I have to have so called bariatric forearm crutches because I exceed the standard weight limits by a few pounds. again I say OMG! Not one of the medical supply places within an hour and a halfs drive from me has them or can get them. WHAT!? Yea now what do I do? They are completely covered by my insurance if a place can get them, otherwise they are $160-$260 a pair. I have no income right now. Disability is in the works but it's a slow process. I have been looking at second hand places with no luck. Any suggestions?
What kind, exactly, do you need? My daughter fell last summer and broke her ankle so bad that she needed surgery. She and I are big people! LOL Anyway, she was so frustrated with the crutches that she only used them twice. IF they are what you need, and we can figure out how to get them to you, we will gladly give them to you!
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Old 04-17-2015, 07:10 PM #7
carolinarose79 carolinarose79 is offline
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Originally Posted by spiritscript View Post
What kind, exactly, do you need? My daughter fell last summer and broke her ankle so bad that she needed surgery. She and I are big people! LOL Anyway, she was so frustrated with the crutches that she only used them twice. IF they are what you need, and we can figure out how to get them to you, we will gladly give them to you!
Thank you so much for the offer. I ended up calling the manufacturer directly and explained my situation, they were very nice and understanding. I was able to get a discount from them and received my crutches a few days ago. Wow what a difference. Again thanks for the offer may god bless you.
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