[Littlepaw]

Hello All,

I would love to hear what treatments have improved color change for people. I have read that LDN helps with the autonomic symptoms. Has anyone had improvement with anything else??? I miss having a normal colored foot as opposed to a blotchy/mottled foot. I like purple and all but Geez, enough is enough...

Thanks in advance and soft hugs to everyone
Littlepaw

[Enna70]

I'm interested in this question too...I just ride it out....if too cold I put on a fuzzy sock....so......good question......(PS I'm on LDN and I don't have discoloration as much.....)

[Littlepaw]

I am glad the LDN is helping! I am moving that direction with one of my doctors but they want to try some other things first since they usually give LDN for MS and other more clearly auto-immune disorders. It will be out of their comfort zone a little.

So far I have not read much about color & temp symptoms improving with any med or treatment other than LDN. I always feel like improving those would help the overall picture.

Any of you who have had blocks, did they help with discoloration of the cool mottled variety? I still have the oral sympathetic blocker in my back pocket. I just don't want to go the other direction opening veins up and having a hot red foot...I'm so hard to please.

[swimtime]

I'm curious about this too and just asked my son's doctor about this over the phone the other day. I'm still waiting on a response. For him, color change is triggered by either cold air or if he is using his walker and dangling his foot (like when we go to the pool and he can't walk bare foot yet to get from locker room to water.) They said keeping it warm helps. I've noticed as soon as he puts it down and starts moving it again, it goes back to normal. So it seems like a circulation problem? I don't really understand it. What is LDN?

[Enna70]

[QUOTE What is LDN?[/QUOTE]

It's the short for the medication Low Dose Naltrexone.

[Littlepaw]

There are some complex mechanisms at work. Some of your son's may improve with increased weightbearing. You say it's worse when his foot is dangling. The foot has a "plantar pump". The veins of the foot depend on pressure and foot muscle action to pump blood back up to the calf which then pumps it further up. Veins are kind of wimpy about this on their own. There is also the autonomic issue, worse when cold. This function can get impaired in lower extremity surgeries even without CRPS and usually improves over time per my surgeon.

My foot looks normal when I am on the bike or walking (unless it's 88 degrees like the other day then goes red mottled). Mine also looks completely normal when I wake up. It does okay with no circulatory challenge such as standing long or leaving it down. Worse later in the day. It definitely seems like a circulatory, neurovascular interface thing. I have been told it will be the last thing to go, I just wish it would already. Seems to me like some discomfort would go with it!

[Enna70]

When I was biking and hiking my foot looked fine but felt tight....now if I walk too long I get the stinging sensation but if I sit long same thing...sometimes I wake up that way too...it doesn't matter if I'm at rest or not, it turns blue....fuzzy socks help when I'm cold and blue....I get very little red but spotty red on the bottom of my foot.
This week it has been testing my patients though....nothing comforts it....not rest; not walking, not elevation or sleeping...I awoke this am with charlie horse from my calf to my thigh...my groin gland hasn't stopped throbbing...my toes feel are acting up too....maybe it's something in the water...

[Jules61]

I just had my second block and it has improved the temperature and color of my foot with the exception of the location where my fracture was - that stays colored all the time.


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