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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Do I really have RSD? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/219387-rsd.html)

swimtime 04-26-2015 11:02 PM

Specific water therapy exercises will depend on what you can tolerate, but can include walking, swimming, sitting and "pedaling", marching, lunges, walking backwards, step-ups (if the pool has wide stair steps vs. ladder) etc. Does your physical therapy place have a pool? Your doctor should be willing to write the script for aqua pt. They can get you started even if you don't have many more visits left for the year. Then if you have a local YMCA or other public pool, like at a gym or recreational facility, you can use that for therapy. I just pulled my son out of formal pt because he's used 20 of his 30 visits for pt for the year, and they moved him from the pool to the gym, which he wasn't tolerating well yet. We go to the local YMCA. They have a therapeutic (warm) pool and also a 0" depth entry pool. The nice thing is that he's been able to walk in gradually shallower water as he makes progress. If you ask your physical therapist, they should be able to give you some direction as to exercises you can do in the pool even if it's not at their facility. The important thing is to keep moving it.

Others can weigh in on vitamins that are helpful. These are what my son's doctor has him on: Omega 3 (for inflammation of nerves, even if there's no visible inflammation), multivitamin, Vitamin C, Vitamin D, Vitamin B, and a script for a liquid magnesium. There's other threads on here with more vitamin info, too.

LIT LOVE 04-27-2015 02:17 AM

Do you have temperature regulation issues? (If you aren't noticing it, it doesn't mean it's happening.) Strange sweating? Any strange hair growth patterns? Changes in skin texture? Shiny skin? Changes in your nails?

These issues don't have to be constant. They can come and go at various times over the years. They can be limited to a very small area, or they can move body wide.

Absolutely explore EVERY possibility. Get opinions from doctors with significant CRPS experience.

Littlepaw 04-27-2015 08:55 AM

Just curious, what did they stick in your ankle? and where and why?

Taywesty 04-27-2015 10:37 AM

my foot either feels like it is frozen or on fire, but no visible skin, nail, or hair changes. And its some kind of new brace, i know its made of plastic. My ankle joint was very loose, and it felt like it was popping out of place, so they put it in to stop that from happening. It limits my range of motion but only a little bit.


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