Just as I was comming to grips with this RSD, I'm rather worried about the skin on my fingers. they look and feel OK, until I Go out in the sun.

As soon as I start driving, with the hand under the sun that's beating through the window, I notice what appers to be small hairline cracks, near the tips of the fingers, and up near the nails.The skin has a slight yellowish tint, mostly on the thumb.

I've pretty much kept my hand elevated 12-16 hours a day for approx 10 weeks. if not elevated, it turns a lovely reddish purple in 10 minutes.

Is it a given that I'll lose my skin, or maybe even my fingers
entirely?


Look at the top finger in the second image, it's freaking me Out I'M WORRIED....................

and that hair growing out of the top of the finger is just lovely, isn't it

Your fingers are so swollen and red. Mine get swollen are mottled color when I walk and let my hands swing but they don't stay that way all of the time anymore. The blocks helped me with that part.

What did your Dr. say about them? Sorry to see that you are going through so much.

I don't drive much due to the TOS, it makes my fingers and hands swell and hurt. Bill use to take me everywhere. Now I walk a lot.

I don't remember if you had TOS or not, just wondering.


Hope you start feeling better real soon.

Ada

Dr's haven't said much so far, just the orthos, at the local university. Basically they said you have RSD

last visit was 6/1 next one is scheduled 6/29, at the last appointment they reffered me to physical medicine and rehabilitation for "pain management" yesterday they sent me a notice saying this treatment does not fit the scope of MSI's covered treatments

MSI supposedly only covers services medically neccesary to protect life, prevent disability, or to prevent serious deterioration of health

I immediately called them, and boy was I livid RSD Dosen't meet those criteria? I'm already burnt out from this long parade of fools, these Dr's could care a le$$

Does MSI stand for your insurance company. Too bad they don't hire Drs. to determine what should be covered and what shouldn't. Don't give up though, fight the insurance to get it paid for. Can you file an appeal. I'm going through that now over Ridelin for CFS. They said it does not meet their criteria of being used for CFS. I filed an appeal in Denver against them.

I understand the burnout. I notice most everyone on here are constantly trying to find Drs. that care and know anything about RSD. It drives a person to burnout.

I go to see a Immunologist this Wed. and I am already prepared for the, well I can't find anything wrong or we can't do this test due to insurance. I see a heart Dr. Friday and he is the 2nd one of them I have seen in his office and my husband saw the other 4. Picking a good Dr. is like playing Russian Roulette. After 6 or 7 tries you might pick a winner.

Maybe they figure that RSDS causes disablitity most everytime anyway so why waste the money. I know a lot of the Drs. have this attitude that they can't help anyone with it so why take on the patient.

I have seen over 100 Drs. in the 20 years I have been ill and only have about 7 that take care of me and care.

I didn't give up though. I think the more Drs. I saw the madder I got. Don't give up, keep at it.

At the University you go to will they take care of you without the insurance paying. Some do. I have been to two that do you might ask. They also have every kind of Dr. and help going in the Universitity Hospitals.

Are you trying for SS so you can get disablity and Medicare to help you? If you can get some kind of disablity you might get more help through Medicare and/or Medicaid.

These are just suggestions. I don't mean to pry but sometimes we don't think of things that we can do when we are really sick.

My prayers are with you. As I said, don't give up.

Ada

pry away Ada, pry away, I'm up till midnight.BTW the redness of the fingers isn't what I'm worried about, it's the tiny little cracks near the nails, seems as though they'll open Up any minute, and the yellowish green tone scares the hell out of me

MSI is county medical coverage for emergencys, for folks with no insurance seems pretty dabilitating according to SSI's definitions. I haven't apllied yet because I haven't read the univewrsitys medical records, God knows what the quacks have written