updating...
 

i went in for my MRI today and i was early. like 2 days early. i swear... my angel was watching over me because they had a cancellation and i was able to get in.
now, here's what's weird. when they got done scanning my spine, the nurse came in and asked me if i had been in an accident. and i said no. she said "you're sure you didn't throw out your back or anything?" i just told her that i got hurt all the time because i am a sportie. but why did she ask me that?????
thennn - when they were scanning my brain, they had this mirrored thing on it so that i could look out instead of up and they were pointing at the computer and one girl picked up the phone and walked out of eyesight. then the other lady looked again and slowly nodded her head. so i'm like WTF is going on?
when they came in and said i was done i said they scared me and she just looked at me. and i said, "you're not going to tell me are you?" and she said "nope, but if i thought it was urgent we wouldn't let you leave..."

i can't stand that because now i'm going to awfulize until i get the results.

i'm sad to say, though. i only had 1 brain instead of 2 like i thought. bummer.

:grouphug:

Hey girl - hold on here - you haven't "done" anything! you had a great, wonderful day, and even shook your bootie! And you sweated - and grabbed some ice. This sounds extremely normal, and happy, to me.
Your hand's reaction to the ice sounds like you might have, um, RSD? DEEP BREATH. You're in the right place. You are still a mom to 3 beautiful children. And you got all that miserable MRI stuff taken care of already. Stick to your plans: your vacation, your appointments, etc. And if your pain is back? Call your doctor and get a new pain prescription. Don't suffer needlessly. HUGE HUG.

thanks molly. i just didn't know that would ever happen.

i didn't have any pain pills, but i took a valium and slept last night. i feel groggy this morning but my hand isn't as bad. it's just stingy.

i'm sorry for overreacting. i just thought that maybe i was the one that wouldn't have continued problems. i guess i forgot about the muscle spasms and the eye jiggling and the hand and feet numbness. whatever.

so i have vowed to never pick up ice with my hands again. i don't even like the stuff anyway. i always drink lukewarm everything. even pop.

i do want to ask this. whenever you guys get shivery, like stepping into a cold pool, does your body like freak out? i don't just get goosebumps, my body actually hurts. it feels like my whole body burns. is that typical?

My dear Angie...
 

My body has been doing that a bunch, Angie! All of a sudden a shiver runs down my spine and I get goosebumps ALL OVER (like almost my entire body)... I have "heard" that it comes from RSD??

My body freaks and it HURTS! A lot of the time my skin is ICE COLD but I have no goose bumps. Then other times it isn't that cold and I get goosebumps. Apparently it doesn't have to do with the temperature of your skin.

I find it strange that it's 90- 95 degrees where I live yet my body is ICE COLD and never warms up like it's surroundings, though anything (like water, books, lotions) else warms up from the surrounding temperature... :confused: :confused:

Strange, but I know what you mean, and hang in there sweetie!! I know how it feels... :hug: :hug:

Hi Ang! I too know what your going through! My hand, arm, wrist..are so cold! heck I get cold chills, goose bumps all over. Ang, my hand, wrist are blue, red, then back and forth. blue, red.. purple too.. heck.. rainbow:winky: My shoulder feels like someone is picking away at me with an ice pick,then feels like someone is putting their hot cigarette out on my shoulder.. ouch!:eek: my arm, wrist, hand, shoulder, too feels so painful, that I am now getting use to this pain. I took a morphine pill and I still hurt on and off like crazy. We love ya here, Angie.. we care.. we understand... we are all "GREATFUL" for one another whom I choose to call "My friends"! Love ya my friend! :hug: Desi

OK Angie,

I have a very bad flare of all my conditions at once, both arms in hell, typing too painful; still, had to say this.

I feel we've really come full circle with you Angie.

Go back to the start of this thread and read it again, the whole thing, right through.

Don't you see a pattern in your posts?

Your strenuous exercising may please you (and perhaps a couple of other posters) but according to your pattern it does not seem beneficial. Moderation may get you further, adapting to a regime of exercise broken by frequent rests.

One other thing. A small amount of sunshine is good, gives you lots of vitamin D. But beyond perhaps 20 mins tops, RSD limbs don't like it. For myself, the idea of putting my RSD and RSI arms in hot sun is anathema, simply unthinkable. If you can do it, and the extremely long sport sessions, perhaps you should get a second opinion. Stamina is unfortunately one of the first things to give way with RSD, sadly.

Please try to start helping yourself more. I think the people on this forum have offered you wonderful help and advice, it's time you helped yourself. Reading the forum from the back end forward would be a start and might give you some insight.

By caring for yourself, you're caring for your family too.

I don't want to encourage you further in a cycle or pattern that seems to me to be potentially harmful and getting you nowhere.

all the best :)

i thank everyone for their advice. i have compassion as well and not all of my posts have been about myself. however, i am extremely offended, artist. i'm sorry if i haven't heeded everyone's advice and maybe i haven't done what i am "supposed" to do, but i thought that that was what this forum was about. i am scared. i have no one here that understands what i am going thru. why is it wrong that i write my fears and what is going on and ask questions?

how am i supposed to know EVERYTHING!!!

my illness is at a different degree than every single person on this forum. i don't minimize ANYONE'S pain or suffering. i have NEVER done that and i never would, but thank you for making me feel that way.


if what you are trying to do is hurt my feelings, you've done it. thank you artist. i have 96 posts. you have almost 900. so if it takes me 900 posts to be so wise as you - i give up. thank you for turning me away. and you know NOTHING about my husband so don't make assumptions.

to everyone else, i truly apologize if i have offended you in any way. it was never my intention. ever. and i apologize to you, artist that i have been so insensitive in your eyes. but i feel that if you want to say these hurtful things for everyone to read instead of PMing me, then i offer you the same courtesy.

shalom

Hi Angie,

My opinion is just that: just my opinion. Most others will have a different one. I felt you should know why I won't be joining any more sessions trying to help in offering you advice, but I'm sure plenty of others will. Please take some advice from my previous post, though, start to read about how others deal with this condition and try to start applying as much as you can to yourself where applicable.

I did not, btw, mention compassion or say that all of your posts have been about yourself.

You have as much right as everyone else to scream and shout, of course, and whinge, we all do it, me too, and I am sorry your feelings are hurt. I've said as much as I want to, Angie, I just hope the "Spoons Theory" starts to mean something to you soon :).

All the best.

Hey guys-
:(
I haven't read thru all of this thread but if and when there is a disagreement or certain feelings that you feel you need to air -
please do that via PM - that is one of many things that they are for.

I'm also asking that some self editing be done so as not to upset the whole group.

Thank you in advance

If any questions PM me , kimmydawn or any of the mods