Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-15-2015, 02:45 PM #1
ERico8 ERico8 is offline
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Default Just Needed a Safe Place to Vent....

So I live in CA and right now it's been rainy and cold for the past couple of days. Needless to say, my CRPS has flared up horrendously in my right foot to the point where I am limping really bad and tearing up at work because it's my body's natural response with the level of pain (crying in public brings on its own embarrassment). Add to this the numerous drs appointments I've had to go to this week and the waiting game of knowing whether or not I'll get the SCS permanent device and when I have to drop everything and go in for surgery which is also a life interruption itself has taken its toll.

I haven't been sleeping well and so I'm quite irritable. My husband has definitely been understanding and I know I've been quite difficult on him lately. I apologize a lot for this and try to see it from his perspective. This is tough on him too plus were newly weds. But this week he really angered me and hurt my feelings. He poked the bear (grant it a hypersensitive, irrational bear). I don't know if any of you look to certain things for comfort (reading, tv, movies, music, etc), but I'm a big movie fanatic. Musicals are my favorite. I'm talking ALL musicals like Singin' in the Rain, Seven Brides for Seven Brothers, Pitch Perfect, you name it. Since I've been diagnosed with this awful condition and I cant workout like I use to, I find solace in these films. Grant it, my depression has made me avoid this hobby lately since I'd rather just sleep. Music is therapeutic and these movies are a great way to escape reality for at least a couple of hours. My husband knows of my love for these movies and while I was always scared to watch one with him cuz he's a typical guy and his opinion matters, he always told me he'd be willing. Well apparently he lied. I let my guard down (mainly cuz I was hurting something awful and needed the escape, plus it was on cable) and showed him Across the Universe which is a contemporary musical with a Beatles soundtrack and war, love, sex, and psychedelic scenes. I guess I figured this was a baby step for him to seeing musicals that are a bit more dated and fantastical. He was quite vocal of his dislike of this film like I had wasted precious time off his life (he didn't even see the whole film). Needless to say we went to bed NOT talking.

Sorry my post is so long.... I just needed to bounce this off people who understanding the ups and downs of this painful roller coaster and it's psychological craziness. I am not denying him his opinion, people don't have to like movies I love. But to be open enough to share something that I find therapeutic during this rough time and have it criticized so harshly like I punished him is just hard to not take personal or be sensitive to. Any body else short fused with their significant other? How do you deal? I know I'm probably being petty but I'm like an open wound right now.
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Old 05-15-2015, 05:28 PM #2
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Hi ERico8,

I am the male sufferer in my household, which also consists of my adult daughter and grandson. Often our viewing preferences clash. She likes modern English Cop Dramas, I like American Sci-Fi, for example. I record and play each Genre as they come up, and we either tolerate the stories - getting drawn in if the Production/Acting is good - or distract ourselves with something else. We don't argue about the tv, and my daughter could disagree with herself!

Neither of us are driven mad by the incessant run of Mickey Mouse Clubhouse EVERY morning, either.

I think tolerance needs to be expanded on… And never go to bed angry.

Dave.
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Old 05-15-2015, 05:46 PM #3
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Your pain is what is making you sensitive....as you shared you don't mind/rob him of his opinion...their gender can be pretty 'gruff' when it comes to an opinion and we can take that as an personal hit of our likes....and through a flare his reaction stung even worse; sorry....
Keep up the fight and know that in the end he cares more about you even if he doesn't like your movies...
PS Singing in the Rain or Seven Brides for Seven Brothers sounds good...shall I bring the popcorn?
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