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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Last month I saw my orthopedic and told him that every step I take, it feels like my bones in my left foot are grinding together. It is the same foot that my CRPS is in. He ordered xrays. I finally got back in to see him today. He said because of the amount of bone density I have lost, it's hard to see for sure if there is a stress fracture or not. My foot is so bad that it will no longer bear weight, it buckles. I will be having a CT scan soon. He said that out of what it could be, a stress fracture is the best. He told me to keep off of it, and to dial back on PT. I was just wondering if anyone here has had to deal with stress fractures in the limb that has CRPS. I am feeling so alone right now...
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Always tired, always in pain, always uncomfortable, BUT we are always strong. . |
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"Thanks for this!" says: | Enna70 (05-15-2015) |
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#2 | |||
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Senior Member
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I am so sorry. You must be so worried but you are never alone.
Sadly, some of us are having extra rotten luck right now. I wish you had not had to join us. So are they putting you in a boot? I guess they want your MRI first. Maybe they could put you on Fosamax to help bone density if you don't take it already. I know that bone issues and fractures can arise from CRPS just ask sweet Enna. She can tell you. I hope you end up with the least onerous possiblity and mend soon! Sending Healing Love, Littlepaw ![]() |
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"Thanks for this!" says: | CRPSsurvivor (05-14-2015) |
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#3 | ||
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Junior Member
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Quote:
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Always tired, always in pain, always uncomfortable, BUT we are always strong. . |
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#4 | |||
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Senior Member
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I'm sure a boot is the last thing you want. I hated mine.
Fosomax (alendronate) is a biphoshpinate that has shown some positive results for CRPS bone pain. There are some studies on Fosomax and CRPS specifically that you can Google. These types of drugs prevent bone resorption and are used for osteoporosis. The new drug Neridronate that is current studies is in the same family. Non weightbearing does suck. Can you get in the pool till you know something? |
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#5 | ||
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Magnate
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A pool would be best, but if not possible maybe you could ask your doc if you could use a recumbent exercise bike? The last thing you want is atrophy to exacerbate your CRPS.
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"Thanks for this!" says: | Enna70 (05-15-2015) |
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#6 | ||
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Junior Member
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I was never able to walk with the boot on. I was hoping to never be in a boot again. Unfortunately there isn't a pool near me. I really hate this waiting game. In PT, I'll only be working on my leg, to try and strengthen my muscles. I am dealing with trying to combat the muscle atrophy I already have. I just wished that fighting the CRPS, was the only thing I had to fight against. This just really sucks. Sorry, I'm just feeling pretty down right now...
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Always tired, always in pain, always uncomfortable, BUT we are always strong. . |
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#7 | |||
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Senior Member
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Even passive range of motion exercises help reduce atrophy. I also felt I had some luck using my TENS unit ala Bruce Lee as a muscle stimulator on muscles that had shrunk down after my surgeries. Just getting it high enough to make the calf fire was helpful.
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"Thanks for this!" says: | Enna70 (05-15-2015) |
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#8 | ||
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Member
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I actually had my ankle fracture....a clean break through and through. And the medical field couldn't tell if my big digit was fractured after the healing of my ankle. Mine buckled on an off until one day it just snapped. I didn't like the boot either; but it beat having a cast. I couldn't wear the boot all the time because when my CRPS flared my even with the blow up section down it was too constrictive, bulky and heavy...
Mine healed but the fear is always there; a pebble scares me....I use a cane for balance; So you are not alone..... ![]() |
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