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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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Well my title is kinda just to be clever.
I had my first visit to pain management today and I was so worried they wouldn't know what I had going on. But oddly when I got there my hand was hugely swollen red and purple and ice cold. I have never had this happen so bad. This was a blessing in disguise, because the hand specialist didn't send any of my records with my referral! They didn't know why I was there! They didnt know if they could do the visit without them. I drove over an hour to get there. But The doc came in I told her why I was sent there she looked at my hand and says " oh my how long has it been like this? Can it still move" (she thought I was in major atrophy) I told her that I hold it funny and kinda bent cause it's more comfortable. She then says "I don't really need the records I can tell by looking at it" (she ordered them anyways) She Started me on gabapentin and wants to do a sympathetic nerve block ASAP. I have one set up for the third. She told me all about crps and was so wonderful to me. She wants me to do P.t on my hand and when I told her I was gonna run out of pt visits cause I had already used some for my back, she said "I'll get them to give you more" I was so worried about this visit and now I feel like I have someone who is in my corner and will do what needs to be done to get to the bottom of this, or help me get some relief. And someone who understands and will listen to me! Very positive day even though I don't like how this first dose of gaba feels! Had to share my experience ![]() |
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"Thanks for this!" says: | birchlake (05-23-2015), CRPSsongbird (05-27-2015), Enna70 (05-23-2015), Littlepaw (05-23-2015), St George 2013 (05-22-2015) |
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