Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 05-24-2015, 11:36 PM #1
barbyblunt barbyblunt is offline
New Member
 
Join Date: May 2015
Posts: 3
8 yr Member
barbyblunt barbyblunt is offline
New Member
 
Join Date: May 2015
Posts: 3
8 yr Member
Default Cruise? YAY! or nay

My family is talking about going on a cruise. I've never been on one before. I'm 32 and have had RSD for 10 years. My left arm and leg are effected.

On good days i can function with enough rest and medication. In my imagination the movement of the boat is what scares me the most. If i have a bad day and need to lay down and not move, the boat will still be moving... if a breeze hurts, the movement of cars, trains, and buses hurt, would the movement of the boat be the same?

Any insight would be much appreciated.
barbyblunt is offline   Reply With QuoteReply With Quote

advertisement
Old 05-25-2015, 01:06 AM #2
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

Personally, I've never had a desire to go on a cruise on the high seas...can't get off the boat that's for sure. it just never appealed to me but I did a lot of land vacations in my life and I'll be 77 this year.

I have friends who have done them and enjoyed themselves for the most part...one friend finally gave in to her husband and went on an amazon cruise, she said it was the worst experience in her life...

I have a friend who deals with RSD and I don't think she ever did a cruise...she gave up driving 15 yrs ago I know that.

What part of the world do they plan to cruise?
caroline2 is offline   Reply With QuoteReply With Quote
Old 05-25-2015, 01:08 AM #3
barbyblunt barbyblunt is offline
New Member
 
Join Date: May 2015
Posts: 3
8 yr Member
barbyblunt barbyblunt is offline
New Member
 
Join Date: May 2015
Posts: 3
8 yr Member
Default

It's a 5 day cruise, from new York (where I live) to nova scotia.
barbyblunt is offline   Reply With QuoteReply With Quote
Old 05-25-2015, 08:33 AM #4
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default

The movement of the boat is fairly gentle. Many people find it soothing and have a tendency to sleep like the dead on ships. Breezes could be an issue as you will always find one on deck. Of course you can just hole up except for periods when the boat is docked and then go topside. People may be an issue as well depending on how crowded the boat is. For getting on and off the ship from port stops there will be lines you have to wait in and also when getting food unless you have a suite and they can bring meals to you. I think it's worth a call to the cruise line to see how they can accommodate you for these activities. If you decide to go you can always check about departing early at one of the ports if needed.
Littlepaw is offline   Reply With QuoteReply With Quote
Old 05-25-2015, 09:13 AM #5
barbyblunt barbyblunt is offline
New Member
 
Join Date: May 2015
Posts: 3
8 yr Member
barbyblunt barbyblunt is offline
New Member
 
Join Date: May 2015
Posts: 3
8 yr Member
Default

Breeze! I didn't even think of the breeze. Thank you. I will look into it, and see what they can do to accommodate
barbyblunt is offline   Reply With QuoteReply With Quote
Old 05-26-2015, 06:52 AM #6
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
8 yr Member
Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
8 yr Member
Default

I went on a cruise last year for my daughters graduation. It was 2+ months after my knee surgery but before my CRPS was diagnosed (I was diagnosed with peroneal nerve palsy just before my surgery).

I don't know if it was the flight or the salty air but my 'bad' leg swelled up something awful. And the pain...ugh. By the 2nd evening, we rented a motor scooter for the duration and I checked in with ship medical. All the tests were negative but because I had surgery recently, I had to go to the ship doc every day for a lovenox injection. I flew back home with no problems.

I love cruising and am hesitant to take any other type vacation anymore.Cruise critic has message boards where you can get more information about what accessibility all the cruise lines offer.
__________________
Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe
Always_Believe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (05-26-2015)
Old 05-26-2015, 12:32 PM #7
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

Flying is an issue for many of us. There are other threads that discuss various coping mechanisms to deal with flying. I flew in 3 (if my memory serves me right) days early before I went on a cruise to try and get back to my baseline pain level.

I had no issues with the movement of the ship and I'm incredibly hypersensitive. I bring a down pillow to cradle my dominant arm when being driven any distance or when I fly. Ships can widely vary in size though, and the newer ones have better stability, so you might want to research your specific ship.

The best part of the trip was being able to swim in warm ocean water--I'm pretty much pain free there. I had a massage on board and utilized the ship's sauna and pool as well.

Regarding breezes, I wore Lidocaine patches over my most sensitive area and there are areas on the deck that are fairly well protected from breezes much of the time.

I did as much as I could tolerate and spent as much time in bed or relaxing and reading as I felt I needed. It was worth it to me at the time, but I think the person I was travelling with would have preferred a more active travel mate.
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EnglishDave (06-01-2015), Littlepaw (05-26-2015)
Old 05-31-2015, 09:48 PM #8
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
8 yr Member
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
8 yr Member
Thumbs Up go for it!

I have rsd that affects my legs where i cannot walk far, stand for long or sit for long. My favorite vacation is a cruise because they offer so many things to do on board and shore excursions for folks with various degrees of abilities or disabilities. If you,re unsure about an event the cruise staff members can advise you. As for the movement of the ship-the way it sways back n forth and the sound of the waves, i found myself sleeping late and napping in the afternoon. I did get seasick ie severe nausea one day on the return voyage cause of choppy waters. This happened on both cruises. The cruise staff have pills available for this. So i lost one day on each cruise. Not bad. I also left out of NY but went south. Many vacations involve so many physical things i cant do, cruising offers alot in one spot that there was always something i could do.
happygirlpa is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EnglishDave (06-01-2015)
Old 06-02-2015, 05:41 AM #9
gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
8 yr Member
gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
8 yr Member
Default

I went on an Alaska cruise about 1 year after being diagnosed with right arm CRPS. I had no issues with the cruise- plenty of opportunity for rest and relaxation. I wore a large thin jacket to protect my arm from the breeze (I usually can't wear anything on my arm). My only issue was the 4hour time change really affected me and took me about 4 days to recover from.

I would do a cruise again if it didn't have such a large time change. Or I'd arrive a few days early to adjust to the time change.

The motion of the boat didn't affect my CRPS at all and I slept like a baby at night.
gigicnm is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EnglishDave (06-02-2015), Littlepaw (06-02-2015)
Old 06-02-2015, 07:42 AM #10
EnglishDave's Avatar
EnglishDave EnglishDave is offline
Magnate
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
8 yr Member
EnglishDave EnglishDave is offline
Magnate
EnglishDave's Avatar
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
8 yr Member
Cool Smirk

Ok, forget (?!?) about your physical issues. Imagine the overwhelming surge of happiness that you will feel participating on an exciting holiday with your family. A change of scenery and the endorphin rush, combined with use of your meds when needed, will have you sailing through.

And should you have an 'off' period you can retire to your cabin for a while until it passes.

I say, Go, Enjoy!

Dave.
__________________
You and I are yesterday's answers,
The earth of the past come to flesh,
Eroded by Time's rivers
To the shapes we now possess.

The Sage - Emerson, Lake & Palmer.
EnglishDave is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Always_Believe (06-02-2015), Littlepaw (06-02-2015), visioniosiv (06-02-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Help!! PCS worse after being on Cruise teacher107 New Member Introductions 3 01-06-2013 02:11 PM
Cruise in a week 5/19 DiMarie Bipolar Disorder 24 06-19-2011 02:21 PM
Our cruise..... bizi Bipolar Disorder 10 12-28-2009 01:39 AM
On a cruise. oldsteve On the Lighter Side 0 06-02-2009 03:28 AM
A Cruise? beautytransforming The Stumble Inn 11 04-22-2008 10:02 PM


All times are GMT -5. The time now is 12:38 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.