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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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New Member
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My family is talking about going on a cruise. I've never been on one before. I'm 32 and have had RSD for 10 years. My left arm and leg are effected.
On good days i can function with enough rest and medication. In my imagination the movement of the boat is what scares me the most. If i have a bad day and need to lay down and not move, the boat will still be moving... if a breeze hurts, the movement of cars, trains, and buses hurt, would the movement of the boat be the same? Any insight would be much appreciated. |
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#2 | ||
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N/A
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Personally, I've never had a desire to go on a cruise on the high seas...can't get off the boat that's for sure. it just never appealed to me but I did a lot of land vacations in my life and I'll be 77 this year.
I have friends who have done them and enjoyed themselves for the most part...one friend finally gave in to her husband and went on an amazon cruise, she said it was the worst experience in her life... I have a friend who deals with RSD and I don't think she ever did a cruise...she gave up driving 15 yrs ago I know that. What part of the world do they plan to cruise? |
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#3 | ||
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New Member
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It's a 5 day cruise, from new York (where I live) to nova scotia.
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#4 | |||
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Senior Member
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The movement of the boat is fairly gentle. Many people find it soothing and have a tendency to sleep like the dead on ships. Breezes could be an issue as you will always find one on deck. Of course you can just hole up except for periods when the boat is docked and then go topside. People may be an issue as well depending on how crowded the boat is. For getting on and off the ship from port stops there will be lines you have to wait in and also when getting food unless you have a suite and they can bring meals to you. I think it's worth a call to the cruise line to see how they can accommodate you for these activities. If you decide to go you can always check about departing early at one of the ports if needed.
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#5 | ||
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New Member
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Breeze! I didn't even think of the breeze. Thank you. I will look into it, and see what they can do to accommodate
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#6 | ||
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Member
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I went on a cruise last year for my daughters graduation. It was 2+ months after my knee surgery but before my CRPS was diagnosed (I was diagnosed with peroneal nerve palsy just before my surgery).
I don't know if it was the flight or the salty air but my 'bad' leg swelled up something awful. And the pain...ugh. By the 2nd evening, we rented a motor scooter for the duration and I checked in with ship medical. All the tests were negative but because I had surgery recently, I had to go to the ship doc every day for a lovenox injection. I flew back home with no problems. I love cruising and am hesitant to take any other type vacation anymore.Cruise critic has message boards where you can get more information about what accessibility all the cruise lines offer.
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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"Thanks for this!" says: | Littlepaw (05-26-2015) |
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