Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-01-2015, 08:57 PM #1
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Default Desensitization?

I went to my first ot/pt appointment and left wearing a tight sock like sleeve that goes from below my elbow and covers part of my hand. My nerves are going insane from this, holy cow, I didn't realize how sensitive it is. Anywho, anyone had success getting used to something like this and thus desensitized their limb a bit?
Therapist said its the least tight first and will get tighter. Said my muscles werent pliable and this would help. it woukd be a nice idea if exposing my arm to the things i shy away from woukd help. Does this make any difference in the long run?
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Old 06-02-2015, 01:32 PM #2
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Is it like a lymphadema sleeve? Mild compression to help with swelling sounds great so long as you tolerate it. Slather on some lidocaine maybe?
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Old 06-02-2015, 01:41 PM #3
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Is it like a lymphadema sleeve? Mild compression to help with swelling sounds great so long as you tolerate it. Slather on some lidocaine maybe?
Sorta like that I need to get some lidocaine! The sleeve really made me aware how sensitive I am not just in the wrist but up to my elbow. I toughed it out my arm isnt as hard but I had to take off the hand part for a while cause I got really swollen overnight and it was really really tight.
But all in all I'm feeling positive about the things we are trying. I'm more relaxed knowing I have some help with this
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Old 06-02-2015, 08:09 PM #4
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Something like that could make things a lot worse. I know of sufferers who have developed ulcers after having casts or bandaging put on their RSD affected limb and if you are one of the 7 - 8% of us who get wounds that never heal it could be very serious for you
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Old 06-03-2015, 12:29 AM #5
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Something like that could make things a lot worse. I know of sufferers who have developed ulcers after having casts or bandaging put on their RSD affected limb and if you are one of the 7 - 8% of us who get wounds that never heal it could be very serious for you
I have this bump already in the arm in the affected are that I picked at and its never healed. I couldn't figure out what it was so of course I have to pick at it to see. I have been wondering if that's a crps thing. I wasn't sure but figured the blood flow and other problems coukd make wounds slow or non healing.
I took the stuff off cause with the swelling I had blue hand.

I think a soft loose one would have been fine once it calmed down. It was somewhat if a comforting feeling ( I like tight things or light pressure, its soothing to me) but I needed some circulation.

I'm gonna have to ask my dr to look at the sore on my arm! Thanks for the info! I will pay attention to that and talk to my ot about it.
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Old 06-03-2015, 06:44 AM #6
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If your hand is swelling and getting blue it is definitely too tight! That's why I put "mild" compression, that way you start gently. Ask what they have larger, lymphadema sleeves come all sizes or can be ordered.
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Old 06-03-2015, 01:11 PM #7
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If your hand is swelling and getting blue it is definitely too tight! That's why I put "mild" compression, that way you start gently. Ask what they have larger, lymphadema sleeves come all sizes or can be ordered.
It didn't seem so tight at first will definitely let him know today that it needs to be more loose
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