[NanaJ10]

Hi, I am 55, mother of 6/5living, grandmother of 10 and # 11 on the way. I am a 13 yr colorectal cancer survivor, and a 8 yr breast cancer survivor, and thus far a 15 yr RSD survivor. I have RSD in my knee. Developed after a surgery. Now I can't have a knee replacement because of it. am very very limited in walking,swells easil, pain gets unbearable and also will get cold, so cold it burns if that makes sense, Mostly what I have that drives me crazy, that I can barely get through is like hitting your crazybone in your elbow, that feeling but it doesn't go away...OMGosh it is awful!!!!!. I have perm total disability thru wc, and medicare. It is so very discouraging to live this way!!!I I have had a pain management Dr since 2001 or 2002, and am on narcotics. I am given a 3 mo subscription at a time. When I went 2 weeks ago, a different Dr was there, and mine had left, he told me this was my last visit and I would be getting a call from occupational therapy because mine was a workers comp case and they are no longer doing long term..ugh...I am in a panic. No Drs around here... He also...opened the door to my room, and with the door wide open, and standing at it he said loudly, "this is not RSD nope it doesn't present as RSD", he then tells me I have never seen a RSD specialist obviously. OMGosh, I told him I had been to about 11 Drs , from wc and they had all agreed and that I had permanent total disability. he preceded to tell me no one I saw was a specialist, I had nerve damage, and it was to late to get help but isn't RSD. He said I was on low dose narcotics and he was pleased to see that, and I was doing everything correct, and followed by... this will be the last time we will be seeing you here...I said I have been on these meds for years, he said oh I will write u a 3 mo prescription, his nurse said.."you have 3 months to figure something out"... He also ask me to get a spinal cord stimulator, I told him I had it made it worse and the dr took it out the next week. he told me they were very expensive and no dr would just take it out...I told him a good dr would. He ask me about nerve blocks. Finally i said to him, if you would have reviewed my chart you would have seen I had a stimulator and many nerve blocks. He just ignored me. I live in southern Ohio, known as the drug area big time. This was the last pain management I know of and they are now only doing short term treatment and have moved into the back and spinal dept. Drs around hear will abosolutely NOT write prescriptions for narcotics because of all the crooked drs and pain clinic arrests, they are all afraid. I have no clue what to do. I took myself off of 1 med to see how I did without it. After 4 days, my knee was terrible, from 6pm last night until 7 this eve. I was taking max breakthru meds, ibuprofen, tylenol, I even tried rubbing vicks because someone suggested it. Nothing helped. I have finally broke over and took ythe med I had cut down and then stopped. Now i am in a real panic. I can't live with this type of pain. I feel so desperate. My family Dr is same as all the rest, does not write narcotics. So so panicked after last 24 hours.