Thank you so very much Sue and Joan!
I have been keeping a journal for 3 years. Thank God for that. I wrote down every single day about what Doc. I was going to, how I was feeling that day, the extent of pain. So, I really had my journal before I had my RSD. In MHO it is very, very helpful in getting your thoughts, complaints.. feelings down on paper. So, hopefully, I can use this. I encourage everyone to have and keep a journal. It is so worth it. Here, I wasn't even diag. with RSD until this April.. wow.! when I read some of the stuff that led up to it.. amazing! Thanks again, girls! Love, Desi

http://www.rsdhope.org/Showpage.asp?...5&PGCT_ID=2621

I think you will find this document very helpful when filling out questionaires for SS. Try using the same terminology they use, it makes it less likely for them to misinterpret what you mean. Sometimes it's as simple at that, using the right words.

Best of luck!

Well, thank you kindly Rogue. this is the 5th. Dr. I'm seeing today at 10:00 A.M.(took me 2 months to get in) he is only 10 min. away by car. He's a hand/wrist specialist. I haven't had no sleep. He wants all of my "original records". hope he can help too. Thanks again, Rogue.. sorry for going off topic! Love, Desi

Desi,
Let us know what the doc says. Hopefully he can come up with something to help...we will be waiting.
Mary

I don't know if you deal with depression or not. But I noticed around here that what has helped most everyone to get it is depression. After all of my years of fighting for mine, the depression is what they put on my file. Also I got the governor involved with my fight and he got it for me in one week and as I said depression is what they used even though I had already been diagnosed with about 20 medical problems. At the time I was so bad off mentally that I couldn't help myself or I could have gotten it sooner.

Another thing, and you already have this but they told me that I needed to go to specialist for everything I had wrong with me and at the time I had no insurance so I couldn't. My PCP had helped me fight for it and because he was just a PCP they wouldn't take his word. But he never missed any of my diagnoses, he got them all right.

I have seen people around here get approved within 6 months, others it took over 2 to 3 years. My husband got his years ago on the first try. He went up in front of the judge and he ok'd it right on the spot with no lawyer. I've seen 3 people around here get it with no lawyer and sooner. I sometimes think it's the lawyers that delay the hearings because of their court dates for other things. The lawyer I had couldn't leave the golf course long enough to go for me.

Good luck and get to work on this right away. You can do it.

Ada

desi,
whatever you do just don't give up. there are so many people i know that faked an illness and got ssi without working a day in ther life. my doc got so mad when they denied me the 2nd time. she said she was so sick of people coming to her office asking her to fill out disabity paperwork for a cough. She was so mad she wrote many letters to them about me. yes some people really need it, but its the ones using the system that are hurting people like us. sorry to sound so bitter, but because they took so long to approve me, i lost my house. don't let them screw with you.
love sue k.

Mary, thank you, I will for sure let ya all know! Love, Desi
Ada, Yes, I dang well know what depression is! I have been on different anti depressents a long time now. It runs on my mom's and dad's side of the famly!I am on EffexorXR 75 mg. and xanan 0.5 mg. I had a baby sis. and a twin brother who passed away in 1998. It was hard to get out of that pit! I thank God for antidepressents! It got so bad, I didn't want to do nothing but stare at the wall. Thank God I'm on them now also before I got this RSD.
Anyway, Ada.. I'm very happy that your Governor was involved with your fight for SSI and got it for you! "Yea"! I will do a little jig for ya, hun That's just "Great"! And telling you .. ya had to go to a specialist is down right awful.. makes me so It's just plain wrong! At least your PCP helped you fight for your SSI They never took his word?? Total idiots and jerks!! bah humbug on them!!
I am, however, am so very, very happy that you won Ada! Oh, and your right about "some" lawyers staying so long on their stupid golf courses! Thanks again, Ada Love, Desi

Hey Sue, That is awful I think too, about some people faking it to get on SSI. How in the hell-o can they sleep at night?? Geeeezzzzz!!
I do agree with you about "The one's using the system" That are hurting people like us! I am so sorry that you lost your home, Sue.. how sad!
Thank you for your reply my friend. Love, Desi

I could never understand faking to get SSI????

You have more chance of making more money at minimum wage!!!
Sometimes I think the government just uses that excuse to make us think we might be faking. I know there are some that get away with faking it, but im willing to bet that you dont have to take your shoes off to count how many that is every year. Judging by how many on here post about turn downs any ways.

I asked .. even begged my surgeon if AI could go back to work soon, he said yes, you can when your hand heals(He didn't know at the time, nor I that I was having symptoms of RSD) he said the surgery made it worse. Thank God I didn't let him do my other wrist(Surgery) or I would have had it! wow! Thanks for the good advice Joan. your a "gem" Love, Desi

I couldn't agree more Allen! you hit the nail right on the "Hammer" Thanks!! Love, Desi