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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-21-2007, 02:46 PM | #1 | ||
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I am sorry I don't have a
lot of time right now but I want to thank everyone for taking the time to reply . I am very thankful for your responses and to all of you I will be back later for a more detailed reply. What I do need and can't seem to find is: Dr.S phone # !!!!!!!!!!!!!!!!!!!!!!!!!!!! I was half asleep when they called at 7:30 AM (3 hour time difference)and they are not on call display Can someone provide me with it . I googled him and the university but I could not break it down Thanks in advance GnP |
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06-21-2007, 09:47 PM | #2 | ||
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Hi GnP,
Sorry, no number - just wanted to wish you luck! all the best! |
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06-23-2007, 05:11 AM | #3 | ||
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good n plenty, I can tell you will never meet a nicer more caring and compassionate Doctor. Ketamine has helped me and helps others.. I think that is why the wait is so long. There are so many peoople having repeat boosters. Please read my other posts. also type in Shannon Stocker. she has had the full treatment to. Coma in Mexico.. I went to Germany. Don t worry about the coma yet. Very few go 40 something to date.The ketamine had always helped me but does not help everyone. But what else can we try.
I stay at the Hampton inn on Race street. Rate is 89.00 for those there for infusions. Tell them your going to Drexel University Hospital/Hahnemann hospital and you can get that rate. Hampton inn race street, City Center. Good luck to you. I hope this is somethign that will help you. But again it does not work for everyone. Its a long haul. Goood luck.It is not a cure, it is to lower your pain level so you can function. Only a few have had a total cure. But the numbers of reduced pain are very good.They cant tell you the dose as each person is truly different and not everyone gets the same dose during infusions. It depends on your RSD and how your body responds. Wishing you the very best, CZ that is his number above. go to Drexel University College of Medicine, Faculty and staff. Last edited by CZZ74; 06-23-2007 at 05:16 AM. Reason: More info |
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06-23-2007, 12:33 PM | #4 | |||
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Best of Luck (if you have gone for it!!)
Fingers crossed it works for you! In reply to earlier --> The UK doesn't do it and the UK doesn't fund ketamine comas. HOWEVER going to beg PM dr about seeing if he can put a ketamine pump in. Yeh, I know they don't exist... doesn't mean I can't be the monkey!! Keeping everything crossed for you! Love ya Froggsy xxxxxxxxxxxxx |
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06-25-2007, 12:47 AM | #5 | ||
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Hello all
I am sorry I didn't get back sooner but I had guests this weekend and that was all that I could do. I know you of all people understand Again thanks for all your care and responses!!!!!!! I managed to buy a little time with Dr S and my decision I wanted to talk with my pain management doctor here. For a number of reasons I have not talked to or seen to him in several months which is unusual. I have just been seeing my neurologist . For all I know he(my PM doc) could be doing ketamine treatments himself by now as he is always on the cutting edge ,so before I go all the way to Philly I better check close to home first. So , I will have a better handle on things tomorrow (I think). If he is not doing them then it is off to Philly I go. do not pass go. I have all the paperwork and I am ready. Thanks for all your kindness. I will let everyone know what happens .If I go ,If I get accepted etc etc. The only thing stopping me(Ok a little indecision here) is that when I did the oral ketamine experiment , I did not have a good experience. In fact I Had the 80 mg IV booster in a day hospital setting followed by 12 days of 20 mgs a day of oral ketamine.I felt great during the process in terms of less burning except that I was completely out of it mentally .Who needs a brain .I mean,they are highly over rated .However,my feet started burning right after that.I mean RIGHT AFTER THAT!!!!! Prior to that I was only upper body! things that make you go mmmmmmmmmmmmmmmmmm!!!!!!!!!!! so you see my reason for indecisiveness I have GnP of reasons GnP |
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