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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-06-2015, 03:50 PM   #11
tigerlily7777
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I am trying something new, completely unrelated to CRPS and using a different part of my body. Too often my thoughts run to foot, foot, foot. I am like a broken record. So I started piano lessons last week. I am taking my son to the music school anyway and they had a slot open at the same time. Hard to make excuses on that one.

I like that it gets me into a totally new place in my head, where I am focusing intensely on my hands and reading the notes. It also re-connects me to a time in my brain before CRPS since I took piano for a while when I was very young.

Yeah for new, non-pain brain activity!
Good for you! It does help to have something else to totally take my focus. I have a keyboard, and sing along while playing. hahaha Making a joyful noise. I have had RSD in my left foot for six months and am just now being able to put it on the floor for any length of time, so I can play my keyboard and sing again. Glad you brought this up, as it is encouraging me to do it a little bit at a time every day. Progress of any kind encourages me to keep on keepin on.
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Old 07-06-2015, 04:19 PM   #12
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Hello Tiger Lily,

Congrats on getting the foot on the floor. That iS an accomplishment. Took me a long time on that one. It does get better little by little.

Welcome to the forum! I did not see an introduction from you. If you feel inclined just put one in the General RSD forum. It will be seen most easily there. This is a wonderful place for sharing and support. Sending hugs,
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Old 07-08-2015, 09:02 AM   #13
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1) My pain was down yesterday...almost all day. I had about an hour of the side of my foot being crushed and then...just a tingle and an ache.

2) Last night I discovered my SSDI was approved. Back pay deposited this morning. Which means....I get to keep my house!!!

3) My son, d-i-l and grandbabies are for sure coming the end of August.

4) I found out my new s-i-l is enlisting in the Army. They are selling the house in CO and my oldest daughter will be moving in with me until he has a station assignment.

Great job everyone!!!!

That's all I have...

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Old 07-08-2015, 07:58 PM   #14
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Two months ago, I had an abnormal time in discriminating between left and right limbs. Today, I had a normal time!!

Also, I had a nerve block in my right arm over a month ago and I haven't had a flare in 2 weeks. It's almost like I have a normal hand.
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Old 07-08-2015, 10:25 PM   #15
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Originally Posted by maygin View Post
Two months ago, I had an abnormal time in discriminating between left and right limbs. Today, I had a normal time!!

Also, I had a nerve block in my right arm over a month ago and I haven't had a flare in 2 weeks. It's almost like I have a normal hand.
Ah that's so good to hear! I'm gonna try a nerve block in a few weeks and am happy to hear that it is helping so many of us!



I added box squats to my physical therapy yesterday!!!
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Old 07-10-2015, 10:11 PM   #16
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Yay! I love this thread, but I feel like my son's been "stuck" ever since the emg. He flared for about five days, it was scary and awful (like what the hec was I thinking, what have I done?) Things calmed back down to normal, but he hasn't progressed since then.

But today, we picked up his custom fit orthotic shoe inserts. (He's flat footed, so I asked the ortho for a script for them, hoping it would help more than the over-the-counter inserts he's been using. I had to ask twice, but we got it!) Turns out that his ankle over-pronates, causing the arch to fall, and puts extra pressure on the damaged nerve. So, when he tried them out today, he got this big smile on his face that just melted my heart. The pain was less with the new inserts! He's excited to see if he can start doing a little more now. Yay! Oh yeah, happy dance!

Bonus: Insurance even covered it, which is awesome, since they're rather expensive. That calls for a second happy dance (and maybe some chocolate!)
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Old 07-12-2015, 09:22 PM   #17
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I went to the grocery store and bought stuff all by myself instead of having them delivered!!!
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Old 07-17-2015, 11:06 AM   #18
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Love this thread!! My success & proud moments are I'm finally being kind to myself & my CRPS. I've changed my relationship with pain & I've stopped holding on for dear life to things that no longer make sense for me. All of these changes were due to an 8 week class in MBSR. I'm proud of myself for taking and I'm proud that I'm still able to rock my humor as a way of coping.

This has changed me but then again we all change regardless of physical diagnosis. I'm taking this opportunity to be an advocate and oddly enough I recently accepted the job as a disability coordinator/counselor at a college. Because I know what it is like to deal with pain, emotional stress, assistive devices & day to day burdens I am loving helping others with accessibility so they also will have the opportunity to follow their dreams.

May everyone have a blessed day
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Old 07-25-2015, 04:57 PM   #19
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Today I accepted without judgment that sometimes I need help with things and hired movers to help me move furniture from old home to new home. It feels so freeing to let myself get help when I need it
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Old 07-27-2015, 05:31 PM   #20
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I took a shower today! okay guys I promise I have been really clean the last two years. But since the whole CRPS debacle my foot was turning red and stinging in the shower. Something about warm water and being down. Today I just didn't want to lolly gag around in the tub as usual so I showered and it worked. Was it because I just got out of cool water? Was it the ketamine? Can I repeat it? I don't know....I was just happy to have a normal colored foot in there.
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