Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-22-2015, 01:58 PM #1
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Been a long time in between success stories so I figured I'd post one.

Around 3 Christmases ago I rewarded myself for making progress and went to my first movie post RSD diagnosis. Sure I had to sit in the very back row so I didn't distract anyone else with my constant shuffling around and foot tapping, along with the sweat pouring off my affected limb onto the floor. And the movie wasn't that great either. (World War Z. I somehow didn't know it was going to be a zombie movie going in.) But as painful as it was, it was liberating!

Next week I am going to see my first movie since that time, symptom free!
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Old 12-22-2015, 07:33 PM #2
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OMG, symptom free movies! That is a success.

Today, I joined a group of friends for a 2 hour holiday lunch at a restaurant with minimal discomfort and very little foot propping. There was quite a bit of laughter and cutting up. Last year I went to a neighbor's house for dinner and was near whimpering the whole time. What a difference!

After Christmas we are going to see the Blue Men. Yeah silliness! This will be at a venue for 2500 with walking and standing in line. I am confident that I will be okay. Even if I have some payback, it ain't what it used to be.
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Old 01-18-2016, 10:10 PM #3
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My son's surgery to remove the 10 pieces of hardware in his ankle was a little over two months ago. He wanted it out for a long time, even after the doctor told him it could make him worse, because the hardware caused a grinding pain when he moved his foot, particularly side to side. His foot also made a lot of popping and cracking noises with every movement. Now with the hardware out, the grinding side to side pain is GONE! as well as the cracking and popping. Once he gets past the setback caused by the actual surgery, I'm confident he'll have a much fuller recovery! Also we installed a home therapy pool to make it easier for him to rehab, which is pretty fun!
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Old 01-27-2016, 10:08 AM #4
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Not so much a personal success story as a applause for the nurses who helped me get through the after effects of my cerebral angiogram. They did everything to make me comfortable-one nurse catered to me all night to get me through the agonizing pain I was in.
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Old 02-23-2016, 03:32 PM #5
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Smile I feel alive!

Last summer, for the first time since I was 14, I went jogging in the exceedingly hot weather. Although extremely painful, I still jog and felt such a release!! I also began work two jobs (one standing one sitting) around the same time. I am so grateful and fortunate that I am able to do this, even through the numbness and tingling, my medication has helped me. Therefore, I am going to apply to medical school knowing that I can control my condition and it's not going to inhibit me pursuing my dream of becoming a physician!
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Old 02-23-2016, 06:02 PM #6
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AnnaDC2016, Hello and Welcome to Neurotalk Support Groups

Running in the heat, holding two jobs and looking at medical school? Wow! Whatever you're doing, keep it up.

I see you found the CRPS forum and there are many other places to explore here at NT. If you like, feel free to post an intro here at New Member introductions http://neurotalk.psychcentral.com/forum88.html
or on the RSD/CRPS main forum where the most of this group can see you.

Many common questions on forum usage will be answered here
http://neurotalk.psychcentral.com/faq.php

This is a great place for sharing and support. Welcome aboard,
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Old 02-23-2016, 06:50 PM #7
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Anna, welcome to Neurotalk! It is so nice to hear that you are able to do so much with your life despite having to go through it while living with CRPS. I am happy for you and it is always nice to hear a success story from both new and old members. Please keep us all informed as to your successes in life. Don't let anything stand in your way.
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Old 02-25-2016, 10:04 AM #8
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Earlier this month I jogged a full mile outdoors PAIN FREE Granted my top speed wasn't exactly setting the world on fire, but that was the point... and MAN I felt completely and totally free. The funny thing is that I used to HATE running with a passion and hadn't run a full mile since the late 90's...but after RSD in my right leg three years ago it's such an absolute blessing to be able move around at all.
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Old 02-25-2016, 11:07 AM #9
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We seem to take for granted the things that we have always found so easy to do, until the day we can no longer do them. I am so glad for you Visioniosiv. Being able to jog for a whole mile is amazing, no matter what the pace is.
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Old 02-25-2016, 12:01 PM #10
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Quote:
Originally Posted by visioniosiv View Post
Earlier this month I jogged a full mile outdoors PAIN FREE Granted my top speed wasn't exactly setting the world on fire, but that was the point... and MAN I felt completely and totally free. The funny thing is that I used to HATE running with a passion and hadn't run a full mile since the late 90's...but after RSD in my right leg three years ago it's such an absolute blessing to be able move around at all.

That is great! Sometimes I have to remind myself that every step counts. Isn't it funny how we don't miss something until we can't do it. Congrats on your success!
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