Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-08-2016, 03:11 PM #1
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Default music makes my spirit sing

Spring is inching its way closer every day. Today we have the whole house open, letting in that fresh air. When I was opening the back door to a room we do not use in the winter my keyboard spoke to my heart and I sat down WITH my foot ON the floor and played a few songs, some a little rusty and some of the ones that I know by heart just flowed and made me smile inside and out.
It is really good for my brain to have something positive to focus on and good for that whole left hand right hand thing too, yup sometimes I pause and think which hand is that? Hey maybe that is a positive thing that my mind is working it out? It does make me happy music of any kind, I was folding the laundry and spotted my harmonica and music in a folder on the dryer. Why not? lol had not played it in a long time, made a joyful noise. The new cat had never heard such a noise, she thought I had a cat howling in my mouth. It was hilarious, I laughed and laughed at her. She was climbing all over me. May we all find some joy in our day.

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Old 03-08-2016, 09:52 PM #2
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Zinnia, it's very cute about your curious kitty.

That's wonderful that you sat down at your keyboard and played. Even better that you did it with your foot down! I have found piano very healing. Not only is it beautiful and a distraction from pain but that intense focus rewires you. Doing something like playing an instrument makes the "hand" portion of your brain spread. I say the less of it focused on pain and your foot the better.

Keep up the good work and thanks for spreading some sunshine.

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Old 03-21-2016, 05:58 AM #3
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Cooked a complete corned beef and cabbage dinner, served it on my shamrock crocheted linen table cloth, put make-up on, wore a real " outfit" with a scarf and jewelry, set my hair and helped clean up afterwards. I even managed not to sleep in my clothes afterward, remove my make-up and brush my hair. Also, the PM doctor gave me a referral to Aqua PT to help me walk normally again. Whoo-hoo.
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Old 03-22-2016, 04:25 PM #4
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I went on a short vacation recently and had some trepidation about flying and getting around. Turns out I needn't have worried this time. I had no problems at all with the 2.5 hour flight, the security line or even the 5+ hour delay at the airport. The post-travel flare I normally had in the past didn't happen.

I had a ketamine boost a week before we left, took it easy for a while before the trip and didn't push too hard while there. I did way better than I expected. Being on the ocean was a real plus because anytime I felt that I was swelling I just walked barefoot in the surf - cool water + movement + osmosis = happy, happy foot.

Gotta admit though, I messed myself up once I got home because having felt so good I might have overdone it a wee bit on the bike. Whoopsy
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Old 03-31-2016, 07:46 AM #5
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Sunday the weather was beautiful here! It was in the low 70s and sunny and best of all no wind. Wind is so painful for me and just a light breeze is painful. I was able to sit on my porch with my dogs and soak up the fresh, warm. I have not been able to do this is over a year, maybe closer to 2!

It's amazing to see how something so little can have such a large affect on my mood.
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