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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-25-2015, 06:30 PM | #1 | ||
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Today I recognized when my pain started to turn into stress leading to more pain, stopped, took deep breaths, and kept my pain from controlling my mind.
What are your successes today guys? |
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"Thanks for this!" says: | bluekrikit (11-06-2015), Littlepaw (06-25-2015), shelbie4u (07-03-2015), stillsmiling (08-28-2015), swimtime (07-01-2015), tigerlily7777 (07-06-2015), visioniosiv (06-26-2015), zinnia (01-14-2016) |
06-25-2015, 09:57 PM | #2 | |||
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Although I am a bit flared up from re-trying an exercise that bothered my ankle before (guess what, still does!) the flare is a lot less severe than in the past. I am not having as much discoloration or pins and needles as I used to have when flaring.
Thanks Ketamine Doctor Man!
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Littlepaw Shine Your Bright Light |
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06-30-2015, 06:12 PM | #3 | |||
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I am trying something new, completely unrelated to CRPS and using a different part of my body. Too often my thoughts run to foot, foot, foot. I am like a broken record. So I started piano lessons last week. I am taking my son to the music school anyway and they had a slot open at the same time. Hard to make excuses on that one.
I like that it gets me into a totally new place in my head, where I am focusing intensely on my hands and reading the notes. It also re-connects me to a time in my brain before CRPS since I took piano for a while when I was very young. Yeah for new, non-pain brain activity!
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Littlepaw Shine Your Bright Light |
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"Thanks for this!" says: | crpsspoonie12 (07-17-2015), EnglishDave (07-01-2015), gramE (09-06-2015), Inspiretoday (07-17-2015), maygin (07-06-2015), stillsmiling (08-28-2015), tigerlily7777 (07-06-2015), visioniosiv (07-06-2015) |
06-30-2015, 10:23 PM | #4 | ||
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"Thanks for this!" says: | Littlepaw (07-01-2015), stillsmiling (08-28-2015) |
07-05-2015, 08:49 AM | #5 | |||
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Okay this may not sound like much but it's the little things right? So for two summers the toenail of my big toe has been turning deep blue when I put my foot down for too long (sometimes 5 minutes). I have used that as a barometer for how rotten my circulation was and indicator to elevate since it almost always started to hurt after turning blue. Between that and not wanting to draw attention to my discolored foot I have not painted my toenails once. Until a couple of days ago. Now they are a searing hot pink.
Circulation is improving enough my barometer looks normal most of the time. It is fun to have happy looking toenails. A little normalcy goes a long way. Thanks again Ketamine Doctor Man!
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Littlepaw Shine Your Bright Light |
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07-05-2015, 08:55 AM | #6 | ||
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So glad to hear your ketamine is going well, Littlepaw!
Here's mine: I got an elliptical the other day and since it is as close to zero impact on my knee as I can get it has been helping so much! I actually got to work out to the point of sweating!!!!!! |
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07-05-2015, 09:06 AM | #7 | |||
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That is so good to hear! Sweating takes work! kudos on the new exercise. The more normal sensory input our nerves can get to interpret the better. It helps reset the whole paradigm. I started a ballet/Pilates/cardio kind of thing this week. I was afraid my foot would blow up after doing it but it didn't. It feels like it is increasing flexibility in the ankle. We gotta keep trying new things! No way I could've done that 6 months ago.
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Littlepaw Shine Your Bright Light |
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"Thanks for this!" says: | crpsspoonie12 (07-17-2015), Jerie (02-08-2016), stillsmiling (08-28-2015), tigerlily7777 (09-06-2015), whiteaa (07-05-2015) |
06-13-2016, 11:44 AM | #8 | ||
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08-27-2016, 06:04 PM | #9 | ||
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I haven't been on here for a while and wanted to give a quick update.
My son was diagnosed with CRPS type 2 (caused by multiple fractures, surgery and nerve damage) nearly two years ago. Although he's had slow improvements, he hasn't been able to do much weight bearing on the CRPS foot. I took him to the chiropractor, as sort of a long shot, in that ever elusive search for relief. The chiropractor adjusted his foot, my son felt something loosen, and amazingly, the nerve pain just simply stopped. I can't explain it, except maybe it was a trapped nerve all along, although a previous ultrasound of his nerves showed no entrapment. He's been able to start walking on it and keeping it down more and is making real progress in physical therapy. He feels like the chiropractor "fixed it" and the muscle pain is so much more tolerable without the nerve pain added to it. **I should note that this was a chiropractor with 30+ years experience who was very skilled. As with any medical profession, the right doctor can make all the difference. Last edited by swimtime; 08-27-2016 at 07:04 PM. |
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"Thanks for this!" says: | BioBased (08-28-2016), ger715 (08-28-2016), Littlepaw (08-28-2016), mary jane (06-10-2017), PurpleFoot721 (08-27-2016) |
07-06-2015, 03:50 PM | #10 | ||
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"Thanks for this!" says: | bluekrikit (11-06-2015), Littlepaw (07-06-2015), stillsmiling (08-08-2015), visioniosiv (07-29-2015), whiteaa (07-06-2015) |
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