Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-08-2015, 07:58 PM #1
maygin maygin is offline
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Two months ago, I had an abnormal time in discriminating between left and right limbs. Today, I had a normal time!!

Also, I had a nerve block in my right arm over a month ago and I haven't had a flare in 2 weeks. It's almost like I have a normal hand.
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Old 07-08-2015, 10:25 PM #2
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Originally Posted by maygin View Post
Two months ago, I had an abnormal time in discriminating between left and right limbs. Today, I had a normal time!!

Also, I had a nerve block in my right arm over a month ago and I haven't had a flare in 2 weeks. It's almost like I have a normal hand.
Ah that's so good to hear! I'm gonna try a nerve block in a few weeks and am happy to hear that it is helping so many of us!



I added box squats to my physical therapy yesterday!!!
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Old 07-10-2015, 10:11 PM #3
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Yay! I love this thread, but I feel like my son's been "stuck" ever since the emg. He flared for about five days, it was scary and awful (like what the hec was I thinking, what have I done?) Things calmed back down to normal, but he hasn't progressed since then.

But today, we picked up his custom fit orthotic shoe inserts. (He's flat footed, so I asked the ortho for a script for them, hoping it would help more than the over-the-counter inserts he's been using. I had to ask twice, but we got it!) Turns out that his ankle over-pronates, causing the arch to fall, and puts extra pressure on the damaged nerve. So, when he tried them out today, he got this big smile on his face that just melted my heart. The pain was less with the new inserts! He's excited to see if he can start doing a little more now. Yay! Oh yeah, happy dance!

Bonus: Insurance even covered it, which is awesome, since they're rather expensive. That calls for a second happy dance (and maybe some chocolate!)
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Old 07-12-2015, 09:22 PM #4
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I went to the grocery store and bought stuff all by myself instead of having them delivered!!!
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Old 07-17-2015, 11:06 AM #5
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Love this thread!! My success & proud moments are I'm finally being kind to myself & my CRPS. I've changed my relationship with pain & I've stopped holding on for dear life to things that no longer make sense for me. All of these changes were due to an 8 week class in MBSR. I'm proud of myself for taking and I'm proud that I'm still able to rock my humor as a way of coping.

This has changed me but then again we all change regardless of physical diagnosis. I'm taking this opportunity to be an advocate and oddly enough I recently accepted the job as a disability coordinator/counselor at a college. Because I know what it is like to deal with pain, emotional stress, assistive devices & day to day burdens I am loving helping others with accessibility so they also will have the opportunity to follow their dreams.

May everyone have a blessed day
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Old 07-25-2015, 04:57 PM #6
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Today I accepted without judgment that sometimes I need help with things and hired movers to help me move furniture from old home to new home. It feels so freeing to let myself get help when I need it
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Old 07-27-2015, 05:31 PM #7
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I took a shower today! okay guys I promise I have been really clean the last two years. But since the whole CRPS debacle my foot was turning red and stinging in the shower. Something about warm water and being down. Today I just didn't want to lolly gag around in the tub as usual so I showered and it worked. Was it because I just got out of cool water? Was it the ketamine? Can I repeat it? I don't know....I was just happy to have a normal colored foot in there.
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Old 08-08-2015, 08:44 AM #8
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Quote:
Originally Posted by Inspiretoday View Post
Love this thread!! My success & proud moments are I'm finally being kind to myself & my CRPS. I've changed my relationship with pain & I've stopped holding on for dear life to things that no longer make sense for me. All of these changes were due to an 8 week class in MBSR. I'm proud of myself for taking and I'm proud that I'm still able to rock my humor as a way of coping.

This has changed me but then again we all change regardless of physical diagnosis. I'm taking this opportunity to be an advocate and oddly enough I recently accepted the job as a disability coordinator/counselor at a college. Because I know what it is like to deal with pain, emotional stress, assistive devices & day to day burdens I am loving helping others with accessibility so they also will have the opportunity to follow their dreams.

May everyone have a blessed day
Thank you so much for this post! It was so inspiring!
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