Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-03-2016, 05:15 PM #61
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I developed RSD after an ankle sprain and ankle surgery in 2012.

Symptoms were 7-8 level baseline pain, shooting intermittent electrical shocks, high sensitivity to ridiculous things like sheets and ceiling fans, extreme sensitivity to cold, swollen purple leg from the knee down, profuse sweating, 5 degree temperature difference between limbs, insomnia (of course), and the inability to walk. And all kinds of weird nervous system symptoms, spreading to other body parts, heart palpitations, shaking hands, gastric reflux, random numbness, and twitching/muscle spasms.

It's been four years since then and my immune system is fortunate to have somehow made it through to the other side. Just wanted to put another success story out there to suggest that full recovery is a potential outcome.
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Old 05-03-2016, 06:17 PM #62
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Visioniosiv

Thank you so much for sharing your recovery with us. We can all use some hope. I am happy for you and with you. So glad you are sharing your success story with us.
:-)
peace
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Old 05-04-2016, 12:21 PM #63
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Visioniosiv,

I keep thinking about your encouraging words. It had helped me to do more, to stop babying my RSD foot, continually putting it up, my husband made me aware of that, as it had become a habit for me. So now I am putting it down some of the time. Using the cane a little less, it is all little shifts in my thinking, and way of doing things. I take a timer out to the garden with me, set it for 15 minutes, and pull, dig up weeds, and then STOP, that is the tricky part, stopping, I sit on a lawn chair, and my hope is, that doing these small things, will help my back to get stronger, and of course my foot is down on the ground. Slow and steady wins the race :-). Then I sit and pet the cats and rest.
The garden is way to big. I am not going to give up on it. Still trying to find a solution. I love being out there, it has always been my focus all summer. I will focus on NOW and what I can do each day.
:-)
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Old 06-13-2016, 11:44 AM #64
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Thumbs down Ketamine? Can you tell me more about this treatment?

Quote:
Originally Posted by Littlepaw View Post
Okay this may not sound like much but it's the little things right? So for two summers the toenail of my big toe has been turning deep blue when I put my foot down for too long (sometimes 5 minutes). I have used that as a barometer for how rotten my circulation was and indicator to elevate since it almost always started to hurt after turning blue. Between that and not wanting to draw attention to my discolored foot I have not painted my toenails once. Until a couple of days ago. Now they are a searing hot pink.

Circulation is improving enough my barometer looks normal most of the time. It is fun to have happy looking toenails. A little normalcy goes a long way.
Thanks again Ketamine Doctor Man!
Can you please tell me more about this treatment?
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Old 08-27-2016, 06:04 PM #65
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Heart Chiropractor Adjustment and Nerve Pain Gone!

I haven't been on here for a while and wanted to give a quick update.
My son was diagnosed with CRPS type 2 (caused by multiple fractures, surgery and nerve damage) nearly two years ago.

Although he's had slow improvements, he hasn't been able to do much weight bearing on the CRPS foot.

I took him to the chiropractor, as sort of a long shot, in that ever elusive search for relief. The chiropractor adjusted his foot, my son felt something loosen, and amazingly, the nerve pain just simply stopped. I can't explain it, except maybe it was a trapped nerve all along, although a previous ultrasound of his nerves showed no entrapment.

He's been able to start walking on it and keeping it down more and is making real progress in physical therapy. He feels like the chiropractor "fixed it" and the muscle pain is so much more tolerable without the nerve pain added to it.

**I should note that this was a chiropractor with 30+ years experience who was very skilled. As with any medical profession, the right doctor can make all the difference.

Last edited by swimtime; 08-27-2016 at 07:04 PM.
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Old 08-27-2016, 06:26 PM #66
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Yay swimtime!!!



I am so glad to hear that your son is doing better. I know what a struggle it has been and the many challanges you both have been through along the way. Thank you for the update and the wonderful news.
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Old 08-28-2016, 03:57 AM #67
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Quote:
Originally Posted by swimtime View Post
I haven't been on here for a while and wanted to give a quick update.
My son was diagnosed with CRPS type 2 (caused by multiple fractures, surgery and nerve damage) nearly two years ago.

Although he's had slow improvements, he hasn't been able to do much weight bearing on the CRPS foot.

I took him to the chiropractor, as sort of a long shot, in that ever elusive search for relief. The chiropractor adjusted his foot, my son felt something loosen, and amazingly, the nerve pain just simply stopped. I can't explain it, except maybe it was a trapped nerve all along, although a previous ultrasound of his nerves showed no entrapment.

He's been able to start walking on it and keeping it down more and is making real progress in physical therapy. He feels like the chiropractor "fixed it" and the muscle pain is so much more tolerable without the nerve pain added to it.

**I should note that this was a chiropractor with 30+ years experience who was very skilled. As with any medical profession, the right doctor can make all the difference.
Yes, maybe it was a trapped nerve after all, who knows.

Anyway. I hope he continues to do better!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-28-2016, 08:48 AM #68
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Swimtime, this is just the best news! That is wonderful and amazing. I can only imagine how happy you both are. Kudos to the chiro for the expert care and kudos to Mom for keeping at recovery no matter what! I find it so encouraging that the improvement came even after a 2 year stint of signs and symptoms.

Nerve entrapment is the number one mimicker of CRPS according to Dr. Pradeep Chopra. Was it CRPS, entrapment, or CRPS caused by entrapment? Who could ever know. I am just thrilled that he is better, has finally gotten some relief and can start moving forward.

Take it easy on the recovery okay? I'm sure he is more than ready to test his new foot out but it will need time to gain bone and ligament strength that he lost having it out of commission for so long.

Sending thoughts of happiness, healing and continued improvement
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Old 08-29-2016, 11:32 AM #69
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That is awesome swimtime So so happy for you and your son!
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