Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-24-2015, 12:27 PM #1
swimtime swimtime is offline
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Join Date: Feb 2015
Posts: 123
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swimtime swimtime is offline
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Join Date: Feb 2015
Posts: 123
8 yr Member
Default CRPS type 2

Neurology was able to get him in for testing today. NCS showed low amplitude of the superficial peroneal nerve, so they moved on to the EMG. EMG showed nerve damage to the motor function, but not sensory function of the SPN. It is in the process of healing, but the neurologist said it takes about a month per inch of nerve to recover. No real treatment except continued physical therapy as tolerated. It's kind of discouraging because there's no short cut out of this, like with a nerve entrapment that can be released. But, at least no surgery is needed, and I think (?) with type 2 CRPS there's not a risk of spread. That's a huge relief, because I have a teenager chomping at the bit to go full speed again when he's better, on bikes, rollerblades, etc. The thought of new injuries and spread is terrifying, knowing that's taken off the table lets me breathe a little easier.

He has an appointment coming up with a pediatric physical medicine rehab doctor. Hopefully, they can come up with a more specific treatment plan to move him forward.

I'm so thankful for a safe place to vent and talk about this mess.
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