I have been feeling lonely (much on my mind) of late and want to talk to others who understand...

I developed RSD following a car accident. Had surgery, ended up leaving permanent nerve damage. I have been around the block and back with all forms of CRPS treatment. I had a 1 lead stimulator trial that was unsuccessful (I got sensation in my entire body. sometimes only in limbs that did not even have RSD. My Dr. did check and verify the lead did not move). Soooo insurance finally has approved a second trial for me, with 2 leads this time!


My 2nd stimulator trial is July 10th. My 21st birthday is July 12th. I am finding each day approaching my birthday i am increasingly more depressed. (I have dealt with depression for many years- not seeing a therapist but will be going back soon).

This has been a birthday i have looked forward to for years(as most all of us did/do). After my RSD began, as you all know too well, my life completely changed. The pain leaves me unable to move hours at a time many days. I no longer able to work or attend school. My social life is hardly existent. ( RSD combined with multiple other health conditions all created/worsened by the MVA have overtaken me). This month one of my best friends committed suicide. It all feeds into my depression which hasnt been to this degree in a few years.

Smaller issues have also put a damper. I am very frustrated from gaining weight(heaviest in my life). SO, now my clothes are too small, and they say it's part due to meds. i'm on but no matter what, its hard to accept.(just not high priority right now). I have a hard time working out (i pass out multiple times a day,and after my RSD will leave me frozen and unable to move for what can be long periods of time).The pain keeps me up many nights. As we share the daily difficulties that others don't give a second thought to.


i know my problems aren't ^$@! compared to many of you on here(and I truly apologize for seeming so gloom). I really thank you all for being on here. Reading posts helps me feel connected. If you happen to think of me please send a prayer my way.

Love and peace

Leggies