I am posting this new thread in order not to hijack Greystreet's.

Visioniosiv, your response to my post about conflicting medical advice made me wonder what we can do about this. The money spent on bad medical advice is considerable and a great loss, but it cannot compare to the considerable pain it causes along with the loss of quality of life.

In my case I believe the ignorance of medical personal prevented early diagnosis. If even one had suggested CRPS as a possibility I would have researched and maybe have prevented it from being a chronic condition.

I also do not understand why there is no decision tree to follow for CRPS. You would think in the Internet age, all doctors would have a computer system to help them diagnose better with a handout.

I am still reeling from the paucity of information I was given regarding brain surgery and follow up. I only learned from a follow up letter that I would need a stent as well as coils, along with lifetime aspirin use. The letter also referred to me as a "he" and mentioned controlling a collagen vascular disease that as far as I know I do not have.

I would like to trust the professionals, but with every interaction I find a new reason to be skeptical.

The bones in my foot and ankle are demineralizing and the pain is through the roof. I have constant throbbing in the back of my thigh and that adds to my misery. I am spending a fortune on healthcare, but I feel like I am my own doctor.