I'm so with you! The ignorance and lack of urgency among my healthcare providers has been so frustrating. I told every single one of my providers before my diagnosis that "I can't relax my leg". I didn't say "I'm scared to" or "I don't want to". I said "my body won't let me". Not a single one of them made note of that as a key symptom. I also told three of them that the seams on my pants felt like sandpaper. Nothing.

Even after I got my diagnosis they continued to fail me. It wasn't until weeks into my own research that I found out I should stop icing (even though I told them weeks before that I thought it was making me worse). My physical therapist even googled it right in front of me!!!!!!

I'm coming to a more and more solid conclusion that I need to trust my own intuition and the wisdom of all of you more than the doctors, as we are all now too aware that doctors are not the all-knowing wizards the media makes them out to be.

I can't even imagine what a state I'd be in right now if I didn't have the level of advocacy and literacy skills that I do. Just as much as figuring how to get our doctors to be better at their jobs than we are, how do we help the 50% of the population that has low literacy skills and can't to the same research we can?