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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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My CRPS was like...

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Old 07-06-2015, 10:17 AM #1
Always_Believe Always_Believe is offline
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Default My CRPS was like...
A kid with an upset stomach at home & totally fine at the doctor...

The swelling, shiny skin, discolorations...all miraculously gone when at the doctor. After a car ride to my parents on the 4th & a trip to fireworks on the 5th and it's swollen, shiny, mottled and purple. Whoda thunk?
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Old 07-07-2015, 05:05 AM #2
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Those symptoms come and go for many of us. If your doctor has not seen you at your worst, you can either make an appointment to go in the same day just so he can make a quick note or you can take pics and show him. At the point that your doc is confident of the diagnosis, it doesn't really matter.
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Old 07-07-2015, 11:48 AM #3
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I have begun taking pictures of my foot's reactions (post surgery for 6 months after cortisone injections), doctors find this helpful as I still don't have an official diagnosis but am leaning towards mild case of CRPS, going for bone scan on Friday.
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Old 07-07-2015, 01:10 PM #4
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hi always. i think pictures are good to take too because some rsd symptoms come and go. it is strange how they sometimes seems to go when its time for a follow up with the doctor but it does happen sometimes.
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Old 07-07-2015, 09:37 PM #5
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I had a doctor say I don't have RSD because in the ten minutes he spent with me, my arm wasn't "discolored enough". It was discolored, purple/blue, blotchy...but not enough. WTF does that even mean?

For some reason, my arm/hand get more discolored as the day wears on. The later the day, the more discoloration. The cooler the weather, the more discoloration. The more discolored it gets, the colder my arm feels.

Does that happen with you too?
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Old 07-07-2015, 10:56 PM #6
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Quote:
Originally Posted by GreyStreet View Post
I had a doctor say I don't have RSD because in the ten minutes he spent with me, my arm wasn't "discolored enough". It was discolored, purple/blue, blotchy...but not enough. WTF does that even mean?

For some reason, my arm/hand get more discolored as the day wears on. The later the day, the more discoloration. The cooler the weather, the more discoloration. The more discolored it gets, the colder my arm feels.

Does that happen with you too?
OMG! The new PM I saw last week said I didn't have CRPS because I could wear a sock and shoe. Seriously? My friggin leg swells for no reason (to the point of 3-4+ pitting), mottles and is 1-5 degrees colder than my other foot/leg, but because I can wear a sock I don't have it???

Yes, as the day goes on, no matter what activity I am doing (or not doing) my leg/foot swells. Sometimes it's as simple as a deeper imprint of my shoe, but it's there.

Thanks everyone for the pic suggestions. I took pictures of my knee all the time after the fracture because it never looked 'right' to me. I have only taken a few pics of my leg/foot because the pictures have never done justice to the real thing.
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