Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-14-2015, 04:09 PM #1
goblue1998 goblue1998 is offline
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Tomorrow I will be scheduling my surgery to get the hardware removed from foot to see if that solves my nerve pain issues since they don't have other diagnosis. One thought was rsd but docs don't think so but doesn't prevent me from worrying. What questions should I ask surgeon tomorrow. Thanks
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Old 06-14-2015, 04:30 PM #2
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GoBlue,

I am sending prayers your way for a successful procedure and healing. Ask your surgeon if they "tease out" and possibly mark cutaneous nerves to protect them. This is easily done and prevents scar neuromas to a degree. If they accidentally cut one how do they handle that? Is there nerve safe cautery available and do they have micro tools and loupe magnification if needed? What will they give you for anesthesia? Regional is good for keeping nerves calm. The latest info out of Stanford for preventing chronic pain is 900 mg neurontin immediately before procedure. The antibiotic minocycline post -op for a week prevent glia from activating which is something associated with chronic pain and CRPS. Will they, can they give you either of these?

Are you allowed immediate gentle range of motion? This helps keep nerves from scarring down....

Okay so that's a lot of stuff! Pick what you think is important and best of luck. Please let us know how you do and don't forget to hit Vitamin C for 6 weeks after.

Sending Healing Love, Littlepaw
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Old 06-30-2015, 08:20 PM #3
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Another update my new surgeon who may take my hardware out recommended I see another PM doc to get another consult on crop before we do surgery. Saw pm today whom I really liked. He is ordering 3 phase bone scan as diagnostick tool and depending results possible series of nerve blocks before surgery if I elect surgery. Glad they are being so cautious in case it is crps but hoping it is not.
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Old 06-30-2015, 09:42 PM #4
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Hi Blue,

Thanks for the update. It is good they are being cautious and if a series of blocks takes care of it that's great! If not (even if it is CRPS) taking the staple out could potentially make a difference. I have read articles on CRPS going into remission if it was caused by an injured nerve, impingement or neuroma that was surgically addressed. I will try to post one I just read recently that was from a plastic surgery journal stating surgery should be considered in CRPS patients who were suspected of having a fixable nerve issue.

Sending hugs,
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Old 07-14-2015, 08:42 PM #5
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Had my bone scan Friday and my foot lit up at the hardware site. Anxiously awaiting official results but fear my worst fear might be confirmed and that it is crps. So upsetting for many reasons but mainly is because none of the other 6 docs diagnosed it even when I told them my surgeon thought it was and now I am year and half in since injury/surgery.
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Old 07-14-2015, 08:46 PM #6
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Little paw did you ever find any of the articles you referred too with hardware removal and crps. Thanks
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