[krmitdfrog]

Hello all! I was wondering if anyone has experienced this issue or have heard of a similar one. My bone scan I had done in April shows positive RSD for left leg but my right foot/leg has been the one in extreme pain for almost 2 years now. My left foot is slowly starting to feel the pain like the right one does. I am going tomorrow to get the bone scan re-done per my neurologist. He is confused by the results of the first one. I am afraid it may be in both legs. Thanks for all the responses!!

[Enna70]

I wonder if you have a different kind of nerve pain...can't think of name right now; but rsd on the opposite that shows up.....please keep us updated. Very interested in your results.

[cdwall]

Three phase bone scans tend to be the most accurate for positive results for "consistent with CRPS" early on in the disease, though this may vary. Most likely, the foot that's had RSD for two years is no longer positive while the one that has just started to bother you is in the time frame to come up positive.

[Littlepaw]

CDWall is on to something here. While I pray it isn't so that is a logical and research supported idea. Good luck tomorrow.

[krmitdfrog]

Originally Posted by cdwall

Three phase bone scans tend to be the most accurate for positive results for "consistent with CRPS" early on in the disease, though this may vary. Most likely, the foot that's had RSD for two years is no longer positive while the one that has just started to bother you is in the time frame to come up positive.

That is exactly what I was afraid of and a was thinking! I am pretty sure that the RSD had started from the 2nd time I messed up my ankle. After the 2nd injury (both were a complete tear of ligaments) I had injured my back at work after that injury, so it very well could be in my lower back as well. The nurse that was doing the bone scan here locally first asked if the one done back in April could have been miss-labeled. I called to make sure it was labeled right. The weird thing is though, the place that did the bone scan knew I was having trouble with my right leg but failed to tell me it was positive for the LEFT leg....they just said it was 'abnormal' so that is what all the other doctors after that test were going by.

When the nurse was scanning my feet and ankles right after she injected me with the dye, she immediately noticed that my left one was a lot worse then my right one, which in turn got her confused at well...blah. I will have to do more researching on what you had posted, cdwall. I will know for sure the results on Friday which will then be sent off to my Neurologist (not local).

I am starting pool therapy this coming Wed. but not sure how long I will need to do that.

I have been going to the local pain clinic here at the hospital for medicines to help me with this pain. I was on Percocet 3x a day a long with Flexeril 3x a day, Cymbalta 60mg 2x a day, Nuvigil 250mg 1x a day (I have narcolepsy or a form of it) and Carbazipine 200mg at night to help me sleep. Both feet are getting worse as far as pain, tingling and coldness are concerned. I wake up every night with night sweats. I currently am still trying to do my job as an Operations Specialist at Verizon but it requires a lot of walking, is very stressful and keeps me at a pain level of 20 out of 10. I have been seriously debating disability because nothing seems to be working for me I cannot drive long distances due to having to take all these medications and my narcolepsy (I ran off the road 2x last week, once into oncoming traffic and the other into the grass). That drive was only a 5 minute drive to the Dr. office.

I know this is a lot of information so I do apologize about that. It has been a while since I have been here. It helps me to talk to people who are experiencing the same things I am going through so I will probably be on here once daily, time allowing. I am only 30 years old and thinking I will be on disability from here on to the future really bums me out, but it makes sense for me and my situation. Less stress, more relaxation, more time to spend with my wife at social gatherings, more family time, etc.

Any thoughts and/or suggestions greatly appreciated!