Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-25-2007, 05:34 AM #11
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Quote:
Originally Posted by theoneRogue420 View Post
LOL, Jo... that link states "sorry, no matches" when I click on it. I bet it works for someone else, though... these search engines can be flaky.
Nope, doen't work for me either.. it says "sorry no matchs" when I clicked on it too. LOL Love, Desi
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Old 06-25-2007, 09:51 AM #12
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Default this is frim 'wing42' on the peripheral neuropathy site

don't think that there are any medications or combinations that give total pain relief, and you have to consider side effects. The longer you take a drug or drugs and the higher the dosage, the worse the side effects.

Here's what has worked for me. First, I follow the program on page 2 of the Stickies section (items #18-20 at http://neurotalk.psychcentral.com/sh...p?t=177&page=2 ). But years ago before putting together a program like that, some people in the old, old Massachusetts General Hospital forum had good relief with an electrical stimulation unit, the Rebuilder ( www.rebuildermedical.com ). The unit is overpriced by a lot, but it really works. I have the expensive one, which cost $300 about 8 years ago. It has been dependable since then. The company gives a 30 day satisfaction guarantee, which they honored promptly for several people over the years. That's the only reason I tried it, i.e. nothing to loose but some time and hassle.

When I started with the Rebuilder, severe aching and stabbing pains and severe skin oversensitivity kept me up nights. I started out using the Rebuilder twice a day, and started getting pain relief and sleeping most of the night after about three weeks. I kept the unit, and switched to once a day for couple of years. Now I use it once a week or so, except on vacations where I use it daily because of all the walking. The pain relief for me is dramatic now that some healing has taken place.

Both animal and clinical research supports healing and pain relief from nerve pain (such as PN) through the use of any low level electrical therapy. Other pulsed electrical units are available on the internet at a much lower
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Old 06-26-2007, 09:28 AM #13
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Hi Deb,

I am going to give this a go at a medi-spa club, they only want 20 dollars. One of my MD's recommended I try it. My problem is mostly in my right upper limb but they noticed their is some swelling in the bottom of my feet.

Has anyone else heard of this or tried it? I am going to go today.

Much Love, Roz
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Old 06-26-2007, 11:59 AM #14
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for $20 bucks it is worth a try Roz ..
on the other link of theirs { http://www.aquachifootbath.com/}I did find this
[ Often a gentle tingling sensation can be felt during the bath.]

just something to be aware of.
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Old 06-27-2007, 05:58 AM #15
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Best of luck, I sure hope it gives you some relief.

But I want to ask a question along these same lines... and maybe it's a warning to you, as well.

I was given a micro-tens unit by an incredibly nice woman here at this site. (And the story I am about to relate is in NO way her fault, she better not take it that way, I love her to death for trying to help me ) I had used a tens in the past, and it helped quite a bit. My ins. now wouldn't pay for one unless I went to PT 3x weekly, so I was trying to buy a used unit here.

When I tried it out, I could barely feel it. It was so low that at first I thought the battery was dead, lol. But after about 5 minutes, that very minor low electrical feeling became more than I could bear. I had to take it off. The problem, I think, stemmed from it being a "microtens" unit.

I have been having the same awful prickly feeling I got from 5 min. of the microtens ever since it happened. It just won't go away! Grrr! I think it is just like my sensitivity to touch... I can handle a firm touch much more easily than I can a "feather-light" one. It's the gentle ones that bring on the sx much harder. Is it that way for any of the rest of you?

So what I meant by a warning is that even 5 min. of the wrong treatment can cause much misery... I have always felt that way about all the surgical procedures they do for rsd/crps. What I never realized is that the most seemingly innocuous thing, like a tens unit, can be just as bad.
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