Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-17-2015, 12:02 PM #1
swimtime swimtime is offline
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Hardware doesn't necessarily have to come out. Ortho doctor recently said that she's willing to take it out, but she's giving a 50/50 chance of it helping or making it worse. It's hard to say for sure if the hardware is part of the problem, it's never been really clear cut in his case. The pain is only directly over the hardware recently as he's started using it more with the rollerblading. So we're just waiting it out and giving it more time in hopes that he will continue to improve without surgery.



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Originally Posted by Littlepaw View Post
Hi Swimtime,

It seems intuitively that there would be risk either way. I'm sure that whether they are able to address the pain contributor and how delicately they handle the tissue makes a difference.

When I had my ortho surgery that caused the damage I had a lot of bruising and swelling, it was a 25 minute procedure. When I had my nerve repair of 3.5 hours I had no bruising at all and minimal swelling. The difference was the tissue handling. The plastics guys are careful and meticulous.

I haven't seen any specific literature on risk breakdown of surgery with CRPS 1 or 2. CRPS 2 is less likely to spread and some of the later studies have indicated that surgery is recommended for CRPS patients if the pain contributor can be addressed. Does the hardware have to come out eventually no matter what due to your son's growth? That may sway the decision.

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Old 09-17-2015, 12:49 PM #2
Enna70 Enna70 is offline
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Quote:
Originally Posted by swimtime View Post
Hardware doesn't necessarily have to come out.
I was told the same thing. Not necessary and 50/50. But I had an overload of hardware. When looking over my x rays it was like whydid you have that full bicycle chain put in.....
Good that you are monitoring.... Keep us updated...
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Old 09-17-2015, 03:25 PM #3
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i am not sure about the impact of surgery and implants for crps II. i have crps I so i know that surgery can cause spread in crps I. but i was also told having any kind of implant could cause spread in crps I as well. (that's why i have avoided dental implants for the teeth i had to have pulled.) if i were you i would get several opinions from your drs i.e. pm dr, neurologist and gp and then make the best informed decision you can. personally i've gotten spread from surgery and from just banging my hand accidentally on something. i don't think there is any sure answer to the question of crps/rsd spread but if i had implants that did not need to come out and i wasn't getting spread from them, i would probably avoid surgery if at all possible. but i am not a dr so please don't go by my opinion. it's just what i think i would do if i were in your situation. hope whatever you decide you feel better soon. hugs.
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