Dear CRPSsongbird, I am so very sorry to hear about your struggles, they are real. A few things. One...be more gentle with yourself. I read a quote once that said, "we show boundless compassion to others, and yet we forget to show even a little to ourselves." Be kind to yourself. If you knew your daughter was in any kind of pain you sound like the kind of mother that would do anything for her. Do those things for yourself. It's okay to let others know how you feel. A harsh truth is, we teach other people how to treat us. I have 4 sweetheart children, and a very loving husband, but sometimes even with them I have to remember that I have to be my own advocate. It's very healthy to have personal boundaries, and those that deserve a place in your life will learn to respect those boundaries you've put in place. Also, this goes without saying......we are human and some days we will hit a wall, be frustrated, and just need to cry. The things others say about you is more of a reflection of them and their ignorance about this disease. Hang in there. Tie another knot, and hold on. Your daughter is learning compassion by learning how to help you. You are not a burden. You're a teacher, and many people in your life will follow your ques. Be brave, and know that you are never, ever alone.

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I agree with what others have suggested. Maybe its time to take stock of your life and decide what makes you happy and what changes you can make to make your life better. Sounds like youre often a 'single' parent which is very hard on any healthy person. Good news is your daughter probably still eats simple foods like mac n cheeze, frozen chicken nuggets, easy things to whip up. I rely on the crockpot to make a real meal a couple times a week. Then its pizza, chinese, and leftovers. We moved to a smaller home since my kids will be moving to college soon and with the small house, its much easier to keep it clean. Wegot rid of alot of clutter too. Even though upkeep is less, we tackle it as a team. If i clean bathrooms, kids vacuum n mop. I cook, they wash dishes. I do laundry if they bring it to the laundry room. Then they take their own clothes back to their rooms n put them away. Really, i just cant do it all anymore. Your fiance should understand this and remember the vows... for better or worse, in sicknessand in health. Hopefully he understands that you need his support and its not like a broken armthat will get better soon. Unfortunately, you need to carve out a new life, a new norm, that enables you to be happier than you are right now. Otherwise the pattern you're in will keep pulling you down. Anytime you want to vent, just give us a hollar. We certainly understand.

hi songbird. i'm so glad you are feeling a little better. i hope you continue to feel better every day.