Betsy Ann,

Hello!! I am so sorry to hear about your daughter's RSD/ movement disorder. I have had RSD for about 1 1/2 years, and I have movement problems as well.

I would be so willing to talk with your daughter!... I am almost 17. Just PM me and I can give you my email address (or you can PM me with your/ her email address).

It is SO frustrating with doctors sometimes! As far as support groups, if you search with your state name and "RSD support group" in the search as well you can find some I am sure (that is what I did, but I found that there were better support groups online- like this one-).

I have heard it from doctors who think I have psychological problems causing RSD/ that I was predisposed to developing this... it's frustrating! And makes you feel horrid when you have a bunch of REAL problems to be told that it's psychological and you just need therapy!

If you don't mind my asking- what doctor are you working with now??

Dr. Sherry is really a cruel man- I could tell you stories of what he has done to children! His therapy works for some, but he believes that it's psychological as well...

Here is a thread that may be helpful to you:
http://neurotalk.psychcentral.com/sh...ad.php?t=19827

Praying you find answers!!