Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-24-2007, 09:15 PM #1
debbiehub debbiehub is offline
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Default Went to RSD Walk Today

Just reporting in from the RSD walk in Central Park- What a perfect day...The weather was great! There were about 70 RSDers there-met and talked with new people -Met Jim Broatch from the RSDSA -He was very nice- Met a man with full body RSD who did the transcortical Stim (experimental tx) and had great results for about 40 days! Not sure how much money we raised- There were a lot of other disability groups there too.

Hope I am well enough to do it again next year!

Debbie
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Old 06-24-2007, 10:38 PM #2
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Well done, Debbie, I'm so glad it went well -and that the weather was fine, makes such a difference.. were there many people around who wanted RSD explained to them? Must have been really interesting! Got any pix?

all the best

Last edited by artist; 06-24-2007 at 11:52 PM. Reason: typos..
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Old 06-25-2007, 12:59 AM #3
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Wonder woman, you are! "Good job".. yes, like Artist said;"Do you have any pictures to share"? Deb, I am glad the weather turned out good! hugs Love, Desi
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Old 06-25-2007, 07:38 PM #4
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yay yay yay!!!!!!!!!



angie
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Old 06-25-2007, 08:28 PM #5
debbiehub debbiehub is offline
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Default Walk

The people I met were all pro RSDers- talking a little meds and the neuro stimulation but mostly just enjoying the day- You felt a connection and didn't have to say much to know how everyone was feeling. Some were older, some younger - I just wished there was some kind of news coverage!

As soon as i get some pics from my frirends I will post them
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