Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-30-2015, 07:18 AM #1
BioBased BioBased is offline
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Default Myofascial Pain Syndrome

This CRPS handout from 2014 states that all CRPS patients have Myofascial Pain Syndrome which must be aggressively treated.

http://www.cspmr.net/files/AnnualMee...14_handout.pdf

Has anyone here been diagnosed with MPS and received treatment?

When I looked up the syndrome on Dr. Google it is clear to me that I have it, yet not one doctor or PT has mentioned the syndrome to me or suggested I get the trigger points injected as the handout describes.

My posterior tibial tendon on my right leg has a line of painful trigger points from the ankle to the knee-ending with severe knee pain where the tendon inserts. I found out yesterday that I can walk unassisted and without pain in a pool. Not sure what this means, but I thought I should mention it.

Also I learned my balance is not that bad in the water. A bunch of little kids joined me in the pool and hovered around me in the shallow end the entire time I was there, the minute I left they swam to the deep end. It did not surprise me, because I am a kid and animal magnet. At one point one of them launched herself at me and I managed to catch her and not fall, joy!
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Old 08-30-2015, 08:47 PM #2
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"This CRPS handout from 2014 states that all CRPS patients have Myofascial Pain Syndrome which must be aggressively treated."

I would just urge a note of caution. I don't know where this presentation came from or who the writer is but it contains some references that are incorrect and/or out of date so I think you need to read it with caution. Its very long but I couldn't find the part that says what you quoted n your post. I did see a brief bullet point reference to diagnosing and treating myofascial pain if present. If I missed the text that you quoted above then maybe you can tell me which page its on? That would be helpful as it is very long. If it does use those exact words then I'd frankly treat the author's knowledge as even more suspect since there isn't a single other research paper, article, case study, treatment guideline or other document (reputable of otherwise) that says all CRPS patients have this kind of pain and it must be aggressively treated.
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Old 08-31-2015, 07:34 AM #3
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To clarify: my mistake-the info from the 2014 handout states "aggressively treated." I researched "aggressive trigger point treatment" which includes injections.

"Virtually all patients with severe CRPS have associated MPS in the supporting muscles of the affected limb (Harden, et al, Pain Medicine, 2013)
 MPS has to be aggressively treated " p.132

I will research this further, but based on my experience I know I had these trigger points on both my legs from the beginning. If trigger points are a hallmark of CRPS it is important information that could help with diagnosis and effective treatment.
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Old 08-31-2015, 04:48 PM #4
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I haven't read the article, but my affected limb and other corresponding areas in my body had all kinds of knotted up trigger points.. The entire body is connected by fascia... Kind of like a semi-liquified web that allows us to move efficiently and safely. An injury or too much tension in one area over time leads to fascia solidifying and stiffening, restricted movement, compensations, and ultimately - pain. And because the entire body is connected, pain often manifests at different sites from the initiating site.

I don't like the MP "Syndrome" label - syndrome is a word the medical field typically uses to mean "We don't quite know what we're talking about yet" ...but agree that you're going to have fascia issues with a condition like RSD, without exception.
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Old 08-31-2015, 11:19 PM #5
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I was told i have it in addition to fibromyalgia. Dr recommended water therapy, water exercise classes. She also recommended rx muscle relaxers. She didnt send me for any injections though. I bet a good massage or a warm jacuzzi would help loosen the knots
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