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-   -   Have you accepted your RSD/CRPS? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/225293-accepted-rsd-crps.html)

tigerlily7777 09-04-2015 08:44 PM

Quote:

Originally Posted by cdwall (Post 1167066)
I remember Littlepaw (I think it was) using a really good phrase about dealing with this disease. It was something to the effect of, balance acceptance with fight.

I've had RSD now for over 2.5 years. It took nine months to get diagnosed so I've spent about two years trying to wrap my mind around this crazy disease and researching treatment options. I feel like have plenty of fight but I'm running low on the acceptance part. As long as I have some new treatment around the bend, I have trouble not thinking it's my magic bullet to make this nightmare go away. I can say it to myself a million times, and I'm in therapy. But I can't make it real on all levels.

What are your stories of acceptance or non acceptance?

Denise

I have found that acceptance does bring serenity. I have also found that it has to be done one day at a time. I do still fight against it at times, like when I have been doing great and then over due it. It can be discouraging to be back to constant pain, where nothing I do helps. I have to remember it is only a set back, and I have experience now in how to help myself through it. I know I need to work WITH myself. I am learning how to balance rest and work, or walking, or living hahaha. Do a little then go and rest on the bed, breathe deeply, do my best to relax, read something to take my mind off of the pain. There is a lot of stress in my life right now that I can not change. How I respond to that stress I can change, one day at a time. Getting upset makes the pain unbearable. I see acceptance as embracing in order to look for solutions to problems. Acceptance changes the focus, from the problem to the solution. I want to be open. Acceptance changes ME, my attitude, my perspective.

happygirlpa 09-05-2015 11:08 PM

[QUOTE=mama mac;1168671]What a great question! My acceptance and non acceptance are a day to day thing. I'm new to the illness and still cycling around the grief process. I deny, bargain, get angry and depressed, sometimes all in the same day. Acceptance to me is not going to be a final destination, but a place I hope to touch more and more often and at some point reside there most of the time. Acceptance will not be giving up on trying new options. I hope it will just be a place where I'm at peace with where I am at the moment and still continuing to do what is within my power to improve my life and health. ~mac[/QUOTE

Mac- your comment reminded me of what i went through early on. Its only through trial and error that you come to learn your new limitations. You can feel great one day, do all kinds of things, then feel crappy for the next day or two. What others can do in one day will take me three days to do. Im like the little engine that could... i think i can, i think i can, and sure enough i really can, just not as fast as i used to be! Its challenging when those around me still expect me to be like them. Sometimes i feel like they struggle with acceptance of the new slower me. I guess in one way its nice they see past my disability and at the same time i'm upset they dont see my disability and stop expecting things from me that i just cannot do. Thats when i mourn the loss of the old me.

mama mac 09-06-2015 05:26 PM

Happygirlpa, Thanks for the kind words! You brought up an excellent point that I am really struggling with. Others expectations: Husband, children, boss, co-workers, my parents etc... I have a hard time accepting that each day is different and getting them to, well? Everyone wants the old me back and that's just not happening. Seems I get better for a bit and they adjust expectations like I am going to stay that way. I know they get frustrated with me, but I have to let that be part of their process. Easier said than done!


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