Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 09-04-2015, 08:44 PM #21
tigerlily7777 tigerlily7777 is offline
New Member
 
Join Date: Jun 2015
Posts: 3
8 yr Member
tigerlily7777 tigerlily7777 is offline
New Member
 
Join Date: Jun 2015
Posts: 3
8 yr Member
Default

Quote:
Originally Posted by cdwall View Post
I remember Littlepaw (I think it was) using a really good phrase about dealing with this disease. It was something to the effect of, balance acceptance with fight.

I've had RSD now for over 2.5 years. It took nine months to get diagnosed so I've spent about two years trying to wrap my mind around this crazy disease and researching treatment options. I feel like have plenty of fight but I'm running low on the acceptance part. As long as I have some new treatment around the bend, I have trouble not thinking it's my magic bullet to make this nightmare go away. I can say it to myself a million times, and I'm in therapy. But I can't make it real on all levels.

What are your stories of acceptance or non acceptance?

Denise
I have found that acceptance does bring serenity. I have also found that it has to be done one day at a time. I do still fight against it at times, like when I have been doing great and then over due it. It can be discouraging to be back to constant pain, where nothing I do helps. I have to remember it is only a set back, and I have experience now in how to help myself through it. I know I need to work WITH myself. I am learning how to balance rest and work, or walking, or living hahaha. Do a little then go and rest on the bed, breathe deeply, do my best to relax, read something to take my mind off of the pain. There is a lot of stress in my life right now that I can not change. How I respond to that stress I can change, one day at a time. Getting upset makes the pain unbearable. I see acceptance as embracing in order to look for solutions to problems. Acceptance changes the focus, from the problem to the solution. I want to be open. Acceptance changes ME, my attitude, my perspective.
tigerlily7777 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (09-05-2015), Littlepaw (09-06-2015), mama mac (09-06-2015), MissyJ (09-04-2015), visioniosiv (09-05-2015)
Old 09-05-2015, 11:08 PM #22
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
10 yr Member
happygirlpa happygirlpa is offline
Junior Member
 
Join Date: Oct 2014
Location: poconos, pa
Posts: 58
10 yr Member
Default

[QUOTE=mama mac;1168671]What a great question! My acceptance and non acceptance are a day to day thing. I'm new to the illness and still cycling around the grief process. I deny, bargain, get angry and depressed, sometimes all in the same day. Acceptance to me is not going to be a final destination, but a place I hope to touch more and more often and at some point reside there most of the time. Acceptance will not be giving up on trying new options. I hope it will just be a place where I'm at peace with where I am at the moment and still continuing to do what is within my power to improve my life and health. ~mac[/QUOTE

Mac- your comment reminded me of what i went through early on. Its only through trial and error that you come to learn your new limitations. You can feel great one day, do all kinds of things, then feel crappy for the next day or two. What others can do in one day will take me three days to do. Im like the little engine that could... i think i can, i think i can, and sure enough i really can, just not as fast as i used to be! Its challenging when those around me still expect me to be like them. Sometimes i feel like they struggle with acceptance of the new slower me. I guess in one way its nice they see past my disability and at the same time i'm upset they dont see my disability and stop expecting things from me that i just cannot do. Thats when i mourn the loss of the old me.
happygirlpa is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (09-07-2015), Enna70 (09-06-2015), Littlepaw (09-06-2015), mama mac (09-06-2015), tigerlily7777 (09-06-2015)
Old 09-06-2015, 05:26 PM #23
mama mac mama mac is offline
Member
 
Join Date: Aug 2015
Location: Small Town East Texas
Posts: 159
8 yr Member
mama mac mama mac is offline
Member
 
Join Date: Aug 2015
Location: Small Town East Texas
Posts: 159
8 yr Member
Default

Happygirlpa, Thanks for the kind words! You brought up an excellent point that I am really struggling with. Others expectations: Husband, children, boss, co-workers, my parents etc... I have a hard time accepting that each day is different and getting them to, well? Everyone wants the old me back and that's just not happening. Seems I get better for a bit and they adjust expectations like I am going to stay that way. I know they get frustrated with me, but I have to let that be part of their process. Easier said than done!

Last edited by mama mac; 09-06-2015 at 05:27 PM. Reason: add word
mama mac is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (09-07-2015), Enna70 (09-07-2015), tigerlily7777 (09-06-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I was accepted for a doggie! Dejibo Service & Support Animals 3 04-15-2012 08:49 PM
I was accepted for a guide doggie! Dejibo Multiple Sclerosis 5 02-14-2012 04:43 PM
Was Accepted for the trial... tysondouglass Myasthenia Gravis 8 09-26-2011 07:48 PM
finally accepted an issue long over do weegot5kiz The Stumble Inn 20 04-14-2009 01:53 PM
Got one accepted! braingonebad Social Chat 20 04-19-2008 06:30 PM


All times are GMT -5. The time now is 03:34 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.