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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#21 | ||
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New Member
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"Thanks for this!" says: | Enna70 (09-05-2015), Littlepaw (09-06-2015), mama mac (09-06-2015), MissyJ (09-04-2015), visioniosiv (09-05-2015) |
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#22 | ||
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Junior Member
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[QUOTE=mama mac;1168671]What a great question! My acceptance and non acceptance are a day to day thing. I'm new to the illness and still cycling around the grief process. I deny, bargain, get angry and depressed, sometimes all in the same day. Acceptance to me is not going to be a final destination, but a place I hope to touch more and more often and at some point reside there most of the time. Acceptance will not be giving up on trying new options. I hope it will just be a place where I'm at peace with where I am at the moment and still continuing to do what is within my power to improve my life and health. ~mac[/QUOTE
Mac- your comment reminded me of what i went through early on. Its only through trial and error that you come to learn your new limitations. You can feel great one day, do all kinds of things, then feel crappy for the next day or two. What others can do in one day will take me three days to do. Im like the little engine that could... i think i can, i think i can, and sure enough i really can, just not as fast as i used to be! Its challenging when those around me still expect me to be like them. Sometimes i feel like they struggle with acceptance of the new slower me. I guess in one way its nice they see past my disability and at the same time i'm upset they dont see my disability and stop expecting things from me that i just cannot do. Thats when i mourn the loss of the old me. |
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"Thanks for this!" says: | catra121 (09-07-2015), Enna70 (09-06-2015), Littlepaw (09-06-2015), mama mac (09-06-2015), tigerlily7777 (09-06-2015) |
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#23 | ||
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Member
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Happygirlpa, Thanks for the kind words! You brought up an excellent point that I am really struggling with. Others expectations: Husband, children, boss, co-workers, my parents etc... I have a hard time accepting that each day is different and getting them to, well? Everyone wants the old me back and that's just not happening. Seems I get better for a bit and they adjust expectations like I am going to stay that way. I know they get frustrated with me, but I have to let that be part of their process. Easier said than done!
Last edited by mama mac; 09-06-2015 at 05:27 PM. Reason: add word |
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