NeuroTalk Support Groups - Coming off Lyrica

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Coming off Lyrica (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/225617-coming-lyrica.html)

Quote:

Originally Posted by Diandra (Post 1169094)

Hi,
I have gotten off Lyrica twice and it was very uncomfortable. I am still on a low dose because my seizures came back after being off it , if I recall correctly for only a month or so.

I suggest you go VERY slowly. I think docs only follow what the manufacture says about Lyrica withdrawal and some are not listening to their patients experiences. I tried my docs taper schedule and it was way too fast.

I suggest you use the SEARCH function here on the forum( on the toolbar at the top) and put in LYRICA WITHDRAWAL.
There are a couple long threads with the experiences of many folks here and my experiences as well.

Welcome and I wish you well,D.

Hi Diandra, if you don't mind me asking, what form of seizures do you have?

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Finally OFF Lyrica…will NEVER go back on

My body finally weened it's way off that horrible drug and I was in tears of relief the first few days. So many of my symptoms decreased!!! I was convinced that I had Fibro on top of CRPS and that I was suffering from something else major because of the all over pain and stiffness I had. These are the things that simply vanished when I came off.
1- All over achiness
2-memory loss
3- extreme sleepiness
4- pain in my upper back & joints

I do have a little bit more nerve pain without the Lyrica but I had to weigh my options and I honestly feel better without all the above. Once I stopped withdrawing, which was HORRIBLE! (sweats, nauseous, shaky, vertigo, sharp nerve shoots,blurred vision, insomnia) I added a WINS (quell) see different post. And I feel better than I have in months. The Lyrica was making my symptoms worse. Not worth it!