Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-21-2015, 10:18 PM #31
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I have had blocks that stopped spread to new areas, I've had blocks that lasted several months, often the magic number seems to be three weeks, and I've had a few that lasted just a day. Technique of the doc makes a BIG difference.
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Old 09-22-2015, 11:16 AM #32
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Thank you Littlepaw,

Keeping my foot elevated and gentle massage are the only things that I have found so far that keep my foot from turning that awful purple color, and the only things that my doctors have recommended so far. It doesn't go to normal, at best it looks like I have a sunburn but that's better than purple. I have been in for doppler scans and CT scans to make sure that blood flow is normal and that there are no clots. Other than an issue with a non union of 1 joint, they all came back normal believe it or not. Although my hands don't get nearly that bad, keeping them moving as much as possible keeps the blood flowing and also keeps the skin color fairly normal. It doesn't take the pain away, but I do think that being able to keep them moving has helped keep the pain levels at a lower level. As for a Jacuzzi, my next door neighbor has one. Since we share a yard for our dogs and to have a park like setting, I'm sure that won't be an issue. I will also look into kiniseo tape. I have never heard of it until now.

Lit Love,

I was just wondering, how far along were you when you had your first blocks done? I ask because, with the reading that I have done, they need to be done in the early stages and preferably within the first 6 months to be effective. I I first noticed symptoms back in January so I am 8 months into this. That, along with it being so aggressive and already spreading to other areas is why I am so hesitant on having them done, and why I am asking for others experiences.
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Old 09-22-2015, 12:26 PM #33
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Quote:
Originally Posted by PurpleFoot721 View Post
Thank you Littlepaw,

Keeping my foot elevated and gentle massage are the only things that I have found so far that keep my foot from turning that awful purple color, and the only things that my doctors have recommended so far. It doesn't go to normal, at best it looks like I have a sunburn but that's better than purple. I have been in for doppler scans and CT scans to make sure that blood flow is normal and that there are no clots. Other than an issue with a non union of 1 joint, they all came back normal believe it or not. Although my hands don't get nearly that bad, keeping them moving as much as possible keeps the blood flowing and also keeps the skin color fairly normal. It doesn't take the pain away, but I do think that being able to keep them moving has helped keep the pain levels at a lower level. As for a Jacuzzi, my next door neighbor has one. Since we share a yard for our dogs and to have a park like setting, I'm sure that won't be an issue. I will also look into kiniseo tape. I have never heard of it until now.

Lit Love,

I was just wondering, how far along were you when you had your first blocks done? I ask because, with the reading that I have done, they need to be done in the early stages and preferably within the first 6 months to be effective. I I first noticed symptoms back in January so I am 8 months into this. That, along with it being so aggressive and already spreading to other areas is why I am so hesitant on having them done, and why I am asking for others experiences.
It's been so long, but maybe 2 years or slightly under. The first round were not done well, and I still had weeks of relief. I responded well even after 7 years or so, by a doc with amazing technique (former spine surgeon). my arm no longer seems to respond to them. (Just had one for my jaw.)
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Old 09-22-2015, 05:11 PM #34
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I find it interesting about the massage and elevation. To this day, my foot looks pretty normal when I have it up. In the morning it looks great. If I just never, ever had to put it down! Gravity is just too challenging. Granted, the color is MUCH better than a year ago but it is still off routinely, just not as dramatic.

I am so happy to hear about the jacuzzi! I'd get in that sucker as often as possible and find a spot where your foot feels okay. I hope it is pleasant and not painful. See If your neighbor will let you play with the temp a little if needed. The study noted reduction of allodynia and hypersensitivity from the jet action of the water.

Let us know how that works.
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Old 09-24-2015, 06:18 PM #35
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I want to mention I had a ton of swelling in my neck and upper chest and used Epsom Salt lotion and it took care of the swelling over night.
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