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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-18-2015, 12:17 PM | #11 | ||
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ENJOY....let us know how lunch went.....
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09-18-2015, 12:20 PM | #12 | ||
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I do a few things to create new connections in my brain, brush my hair and teeth with my non-dominant hand, but so far nothing helps when I try to get a word out. Sometimes I get three words stuck together at a time in a word sandwich. It is hard to go from being high functioning to "crap that's too much trouble, I cannot be bothered." At one point I didn't bathe for two weeks-just tidied myself up a bit with baby wipes. I so get the excitement of going out! I just got back from assessing a public pool for walking and going to a Greek food store to pick up a meal. Wow, it was wonderful to be out. Now I am going out all by myself to buy a card for my friend. Mundane is marvelous when you have been deprived of it. I hope your lunch is great. |
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09-18-2015, 01:10 PM | #13 | ||
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See this is so true for us.....it hurts to talkand sometimes in be middle of a sentence I just trail off....and wouldn't you know it that's when people want to listen and they burst out laughing.
I try asl but am having a hard time with sentences.....meaning want food I end up trying to sigh the whole sentence..... I am hungery want to eat with me? Etc....or the finger spelling. And looks so I end out shouting the word in the end..... But yes it's hard to be talking and the words just don't make sense.... |
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09-18-2015, 02:37 PM | #14 | ||
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Oh Enna, it's frustrating and exhausting not to be able to talk when you need to. I hope it gets better for you.
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"Thanks for this!" says: | mama mac (09-18-2015), stillsmiling (09-19-2015) |
09-18-2015, 04:13 PM | #15 | ||
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"Thanks for this!" says: | mama mac (09-18-2015), stillsmiling (09-19-2015) |
09-18-2015, 05:05 PM | #16 | |||
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But.. today, I must be honest. I blew my diet right out of the water. BOOM! GONE.. Good bye, so long diet (for a day). I had the biggest juiciest hamburger with Onion rings and two large Dr. Peppers. WhoYA! I don't do that often, but it was fun! Now, it's back to the diet (as he hides a left over candy bar behind a celery stick). |
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09-18-2015, 05:07 PM | #17 | |||
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"Thanks for this!" says: | mama mac (09-18-2015) |
09-18-2015, 05:23 PM | #18 | ||
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Lunch sounded great....I've gone cold turkey from just about everything.
As for what else can we do....dish it. Yeah well, what are we talking about? Lol. I usually forget to get even.....ha ha |
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"Thanks for this!" says: | mama mac (09-18-2015) |
09-18-2015, 05:40 PM | #19 | |||
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"Thanks for this!" says: | mrsD (04-16-2016) |
09-18-2015, 06:55 PM | #20 | ||
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