Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-18-2015, 12:17 PM #11
Enna70 Enna70 is offline
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Originally Posted by -Spike- View Post
WOOOO WHOOooOOO

I'm going out for Lunch.. I'm so flipping excited to finally get out of this house! I think, I'll do back flips. ROFLOL Otherwise referred to as falling off the curb and skinning my knee! Back in a bit... Toodles!
ENJOY....let us know how lunch went.....
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Old 09-18-2015, 12:20 PM #12
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You just are not kidding about the brain fog. That is so debilitating. I couldn't remember the word BarBQ yesterday. Nor could I stop stammering and slurring my words all through out the day. Once the Thunderstorm was finished, at least I passed out from the pain! Sheesh! Years ago, I took an American Sign Language course, since I had a family from the hearing impaired community in my Church. I'm relearning ASL now simply to keep my brain busy and try to sift through the fog. I hate absolutely hate what CRPS has done to my brain functions. I used to be able to mentally multitask on three projects efficiently at once. Now, I can't even open a paper bag. LOLOL

-Spike-
Keeping up with ASL is brilliant!

I do a few things to create new connections in my brain, brush my hair and teeth with my non-dominant hand, but so far nothing helps when I try to get a word out. Sometimes I get three words stuck together at a time in a word sandwich.

It is hard to go from being high functioning to "crap that's too much trouble, I cannot be bothered." At one point I didn't bathe for two weeks-just tidied myself up a bit with baby wipes.

I so get the excitement of going out! I just got back from assessing a public pool for walking and going to a Greek food store to pick up a meal. Wow, it was wonderful to be out. Now I am going out all by myself to buy a card for my friend. Mundane is marvelous when you have been deprived of it.

I hope your lunch is great.
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Old 09-18-2015, 01:10 PM #13
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See this is so true for us.....it hurts to talkand sometimes in be middle of a sentence I just trail off....and wouldn't you know it that's when people want to listen and they burst out laughing.
I try asl but am having a hard time with sentences.....meaning want food I end up trying to sigh the whole sentence..... I am hungery want to eat with me? Etc....or the finger spelling. And looks so I end out shouting the word in the end.....
But yes it's hard to be talking and the words just don't make sense....
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Old 09-18-2015, 02:37 PM #14
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Oh Enna, it's frustrating and exhausting not to be able to talk when you need to. I hope it gets better for you.
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Old 09-18-2015, 04:13 PM #15
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Oh Enna, it's frustrating and exhausting not to be able to talk when you need to. I hope it gets better for you.
Sorry spike....kinda going on here....bio sadly no....this is as good as it will get for me. Thanks for you concerns.
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Old 09-18-2015, 05:05 PM #16
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Sorry spike....kinda going on here....bio sadly no....this is as good as it will get for me. Thanks for you concerns.
Hey! No problem! I had a great time at lunch today. I usually really watch what I eat, since my CRPS reacts poorly to my former diet. I now eat tons of "healthy" food. For me, that was a huge switch.

But.. today, I must be honest. I blew my diet right out of the water. BOOM! GONE.. Good bye, so long diet (for a day). I had the biggest juiciest hamburger with Onion rings and two large Dr. Peppers.

WhoYA! I don't do that often, but it was fun!

Now, it's back to the diet (as he hides a left over candy bar behind a celery stick).
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Old 09-18-2015, 05:07 PM #17
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Oh Enna, it's frustrating and exhausting not to be able to talk when you need to. I hope it gets better for you.
Man isn't that the truth. Sometimes I stammer so badly that my friends just roll their eyes at me.... which I promptly pick up and roll right back at them. I mean, what else can I do?

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Old 09-18-2015, 05:23 PM #18
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Lunch sounded great....I've gone cold turkey from just about everything.
As for what else can we do....dish it. Yeah well, what are we talking about? Lol. I usually forget to get even.....ha ha
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Old 09-18-2015, 05:40 PM #19
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Lunch sounded great....I've gone cold turkey from just about everything.
As for what else can we do....dish it. Yeah well, what are we talking about? Lol. I usually forget to get even.....ha ha


You usually forget to get even? WELL now... hmmmmmmmmm!
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Old 09-18-2015, 06:55 PM #20
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You usually forget to get even? WELL now... hmmmmmmmmm!
Yeah, I usually let everything go. Peoples, famdamily walked all over me......
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