[89danboy]

Hello everyone,wanted to ask how many of you deal with being bed riddin in bed or the couch 24 /7 due to the fact that your body feels awful just lying there with all your body aches and the unbearable chronic fatigue ,it's so hard to explain this to anybody but ,I deal with all the body temperate changes cold sweats and what I am feeling is agony,I suffer just lying there all day,I get little relief here and there where I am able make a sandwich or go get the mail.if I try anything that involves concentration and movement for a few minutes it puts me in a flare up that last for a few hours .my heart rate jumps up and I get cold sweats and heavy breathing.i get this if I try to cook a burger and side dish on a day where I'm able to do this it puts me in that kind of flare.almost the feeling of a sugar attack and anxiety attack.i get a lot of anxiety with just the thought of having something to do.like knowing I have to go to a Drs oppointment that week.it stress me out not knowing how I'm gonna feel that day knowing I will be up rite in a chair for 2 hrs sometimes ,I'm so weak feel so bad all the time I have to lay down or its agony trying to sit uprite.my Injuries are shattered right calcanious"heel" compound fracture of right wrist and broke back,I have pain and a lot of symptoms in these areas,but this is not causing my disability .its everything I mentioned,the constant debilitating fatigue,constant body temperature flares ,major stomache aches,the suffering body aches and pains,the anxiety I get on any type of pressure put on me,like have to go to your Drs today.i haven't been to a restaurant,movie,to see relatives or friends been to anybody's house or mall in like 3 years now.ive had rsd since 05.took me a year to rehab my injuries and made it back to work a year later.for the next 2 1/2 years I was getting major symtoms and flare ups .finally bye nov of 2008 I couldn't get out of bed..it took 3 years for a diagnoise .i went thru hell befor I was givin medicine prednisone for the major inflammation in my body.iknow a lot of this is coming from my brain the limbic system I believe causing the feeling of no pleasure,feeling lousy brain fog ,can't remember anything,depressed for what became of my body.i would like any of you dealing with this disease that has you laying on the couch or bed 24 /7 unable to do anything cause of the way you are feeling .what causes you to be this way.id like you to describe what causes you to be this way.its so hard to explain to people how we feel and why were disabled.i would really appreciate how you feel and your experiences with dealing with it.i am truly blessed to have a group of warriors to talkwith that understands you or us.btw these are my meds,methadone 80 mgs oxy condone 30 mgs xs 2 a day for break thru pain ,remeron for my stomache 45 mgs x1 ketamine nasal spray 10 mg sprays ,take 20 sprays a day approx . Prednisone usually once every 6 weeks for 5 days,just had an inpatient ketamine infusion last month ,5 day 24 hrs x 5days. got no relief from it.looking into the hyperbaric chamber as my next treatment .i also use a tens unit,for my back ,although I just started using on my head to try and reset my limbic system.thanks for listening .i prey for all of you