Frogga,
Can't say as I blame you feeling like you do. That ummm errr geeze can't think of anything nice to call her *LOL*, that person just doesn't get it. Maybe she really likes the drugs they give her *LOL* so she fakes being worse than she is. Maybe she either gives away or sells certain of the drugs the clinic gives her since she obviously doesn't need all they give to her.

When having RSD you envy what everyone else takes for granted: being able to walk &/or look like you walk normally anyway *LOL*, go up stairs, etc etc etc. I don't mean eny in the sense we are not happy for them to be able to do walk or whatever, it is just we envy the 'ability' to do those things. Then to see someone fake it, like that??? Well it is rather frustrating. To be honest it pi$$es me off completely. I couldn't nor would I want to do something like that. Heck I would give alot just to look normal when I do walk *LOL* I can't walk very far mind you, but would like to look normal when I did.

Hang in there, people like her get theirs in the end. She still has to get past the good Lord don't ya know???

DebbyV

Frogga,
You had me LOL about that "faker" Anyway, can't the Dr. tell if "The faker" is faking it?? hmmmmmmmm... that is a shame that she has to fake!! wow!! maybe for much needed attention? Frogga, I so admire you and Vanessa being you two are so young and still manage to come here to help "ALL" of us out. You two are so young and yet.. your always there, helping, making us LOL I know if my child had what you two very young girls had, I would be .. I don't really know what I would be?? just want to say that I admire you both. you are both "Wise" beyond your years and I so love you both. love and hugs.. Desi ,

Sorry....I don't mean to be stupid here, but I have been in pain for a number of years due to several failed ( Hydrocephalus) Shunt revisions. My brain has collapsed twice during these 22 surgeries, and this has left me with more pain than most people can imagine in a lifetime...but then most of you KNOW what I am talking about.
I am wondering if I am a candidate for a pain pump now? These surgeries were done in 2001-2002....and I am just miserable. Each time I get hospitalized for something else, the same thing happens, the lectures, the dirty looks,etc. I was dx'ed with Bell's Palsy last week, and the way I was treated in the ER of our local hospital was deplorable.....no one should be treated like that.I went to my opthamalogist for eye drops( the OTC stuff just wasn't working ) and she sent me ASAP BACK to the ER, and yup, you guessed it, the Dr. there was furious with me. HE did what she ( the opthamalogist) asked, another CT-scan was performed, simply to MAKE SURE that nothing had happened within the previous 24-30 hours.....from the 1st scan.
My pain in largely in my head...althoughh it does radiate down my arms at times. On a scale from 1-10, I can tolerate an "8" headache, but most of the time my head pain is much much worse. No one should have to live like this, but what can you do ?
I need help....I don't however, need some doctor ( I live in Michigan ) telling me that I need to see another pain specailist that will obviously see me, make me into an "inpatient " for 2-3 weeks and then, despite everything that each pain clinic has tried ( conventional & unconventional treatments ) the Dr(s) come in to my room,announce that they can't do anything more, and need to put me BACK on my pain meds and send me home....Is there any help out there for someone like me ? I would be willing to re-locate, I am getting tired of this. If I could find some relief somewhere..... IF anyone has a suggestion, a clinic a doctor(s) to see....I am all EARS ( and EYES ).....
Thanks so much for listening to this long and rambling e-mail......
Once again, AM I a candidate for a PAIN PUMP ? Are there cities in which some Dr. might be willing to help me ?
Thanks !

There is a pain pump and SCS forum on Neurotalk -see the link in the Sticky Threads at the top of the homepage.

Good luck to you. Sandy

I'm now on my 2nd morphine pump & I can't begin to express just how much this has changed my pain management - and in all the right ways. For someone considering this option please accept & consider the following:
1: Pumps are not the silver bullet that solves all your pain problems and that you'll wake up the next day pain free. Morphine pumps are more like a very radical last resort when all else fails. All prospective patients must accept that pumps have some serious and rather annoying problems that goes with them. For those in super severe pain, these new problems are worth the hassles.
2: All patients must jump through a lot of hoops for their new 20 to 30 grand gadget that's a real annoyance in the side. They're expensive up front. Not cheap to refill & require a great relationship with your Very trusted doctor.

Even with my pump I'm still on 160mg of OxyContin plus OxyIR I take for breakthrough pain as PRN. Where you'll land is anyone's guess, but accept up front that the pump may be only part of the solution for managing your pain better. After 8 years with these hockey pucks in my gut plus the knot on my back I understand the drawbacks yet I'm thankful each and every day for this technology that helps manage my pain levels bested than ever. You might experience the same too. Insure hope so. Now go get the test & see if this is an option that can help you regain so much more of your life that pain sucks away. Best of luck, Bob

Dear Frogga
I know about pain pumps not sure about the med you are talking about ketamine" I assume that is a medicine but I have had my pump for almost 5 years and it has changed my life. before I could do almost nothing because of the pain after laying in a bed for five years my doc offered me one and I took it. He has a clinic next to his office does the surgery there. All his staff so no hospital stay that was a good start. I hate surgery after having five in a row I swore no more. But that is not the right mind set this is not surgery hoping it is going to help the situation after passing the trial you will know if the meds work then they will implant the pump. It took them less than 30 minutes to do the implant I was under did not feel any pain recovery was not bad for me because it only took a couple of days where my other stuff took years. The pump has given me back to me. Now I do not dwell on pain because there is none. When I first got the pump you take pain pills too until they get the dose right for you which can take a month or two but i had relief as soon as I woke up the adjustments of meds is for detail they do not want you to have any pain. That is there job! You can ask me any questions you so desire and I will give you the truth but I will say to stop the pain I would had done anything I have been in pain 18 years with the pump only five of them. I can do so many things could not do before. Do your research and feel comfort when you make your decision. You will have a trial run to make sure they have a med that will work it is done in the office/clinic lasted about four hours if it works they will schedule time to implant it is on the left side of my stomach out of the way of blue jeans many times I forget it is even there it is so small all I do is go in and get it filled when my time comes up takes 15 min's to do then I am out the door in the sunshine. I am going to watch over your post to see what you decide because it is your decision. also remember you can email me if you have questions.
Later
donnieJ