[Indea88]

I have had this for at least 6 years, TOS for 18. 5 years ago the Dr. Told me
I had stage 2, I was holding my own, and I blocked out the rsd part. Refused Ketamine, was afraid of the side effects.

In July of last year I started with a rash/itching on my left inner ring finger, the Gp tx me for lice! Ive been to two Derms, and the Gp. Not one treatment has helped, cotisone cream, salicylic acid cream, Nothing".....I have an upper trunk/neck injury.I have had the redness on my neck and chest,my inner arms, but this is on my hands, worse then ever now. It literally looks like psoriasis, the key I think is nothing helps, only getting worse.

I am miserable, my hands itch, swell and I'm hiding them in public, it looks contagious and people look and think "oh what is that" I have an appointment next week for my neurologist and I think I know its progressed. This is worse then the pain, Ive gotten used to the pain, now this.

Really depressed and sick of this monkey on my back
Add the fact that none one has heard of it, frustrates me even more

[lorigood243]

Dear indea88

I have nothing but admiration for you! 6 years, same as me. I just got diagnosed 9 months ago. i thought at least i have something to call this monkey on my back! my rsd is on my abdomen...i have 85lbs of swelling on my abdomen and no one knows how to stop it from growing~!

But whether its in your hand, or on your abdomen, its all relative to you, no ones rsd is in any better place than anyone elses...it just suks. But I am from Jersey originally. Born in Somerville, spent 5 years in lovely Manville,
then spent the rest of my life in Ventnor and Atlantic City. we are tough being from jersey. you know the saying..Dont worry..I got this, im from Jersey! what part of Jersey do you hail from?
Is there going to be a cure soon., probably not, but we got to have hope we have to hang in here. There are friends and family that need us and we dont want to make them miserable by taking ourselves out of the game early.

So hang in there dear...we shall overcome, I hope!
Lori

Originally Posted by Indea88

I have had this for at least 6 years, TOS for 18. 5 years ago the Dr. Told me
I had stage 2, I was holding my own, and I blocked out the rsd part. Refused Ketamine, was afraid of the side effects.

In July of last year I started with a rash/itching on my left inner ring finger, the Gp tx me for lice! Ive been to two Derms, and the Gp. Not one treatment has helped, cotisone cream, salicylic acid cream, Nothing".....I have an upper trunk/neck injury.I have had the redness on my neck and chest,my inner arms, but this is on my hands, worse then ever now. It literally looks like psoriasis, the key I think is nothing helps, only getting worse.

I am miserable, my hands itch, swell and I'm hiding them in public, it looks contagious and people look and think "oh what is that" I have an appointment next week for my neurologist and I think I know its progressed. This is worse then the pain, Ive gotten used to the pain, now this.

Really depressed and sick of this monkey on my back
Add the fact that none one has heard of it, frustrates me even more

[Teresa Marie]

Hi Indea88

I just read your post and again admire you for the 6 years with RSD. In August it will be 6 years for me also with this burning RSD. Anyway, the rash you are describing sounds like what I had 2 years ago. Since I have eczema (mainly on my hands) I thought it was that and continued to treat it with the cream the doc order for that. Come to find out I had athlete's foot on my right hand!!

The cream I'd been put on (mainly hydrocortisone) spread the athlete's foot. Mine started on my pinky also then spread to the rest of my hand. It was itchy, red, swollen, scaley, and everything you described.

Just a thought--maybe it's athlete's foot. Mine was dx by a derm doc by taking some of the skin cell and viewing through the microscope. Only took 10 minutes. Treatment consisted of another cream, Keteconozole.

Maybe just something to think of. Here's to getting in to seeing one of those docs though!

Teresa Marie

Originally Posted by Indea88

I have had this for at least 6 years, TOS for 18. 5 years ago the Dr. Told me
I had stage 2, I was holding my own, and I blocked out the rsd part. Refused Ketamine, was afraid of the side effects.

In July of last year I started with a rash/itching on my left inner ring finger, the Gp tx me for lice! Ive been to two Derms, and the Gp. Not one treatment has helped, cotisone cream, salicylic acid cream, Nothing".....I have an upper trunk/neck injury.I have had the redness on my neck and chest,my inner arms, but this is on my hands, worse then ever now. It literally looks like psoriasis, the key I think is nothing helps, only getting worse.

I am miserable, my hands itch, swell and I'm hiding them in public, it looks contagious and people look and think "oh what is that" I have an appointment next week for my neurologist and I think I know its progressed. This is worse then the pain, Ive gotten used to the pain, now this.

Really depressed and sick of this monkey on my back
Add the fact that none one has heard of it, frustrates me even more

[kathy d]

Dear Indea 88,
Just a thought when you said "This is worse then the pain, Ive gotten used to the pain, now this." I don't know how old you are but is it possible it could be a form of shingles?? That is a virus and I know causes a rash and bad pain. I guess if left untreated it could spread. I feel so bad for you. rsd is bad enough. Good luck and keep us posted. I know many years ago I had chicken pox and calamine lotion worked well. I know there is a Benadryl spray (generic one is good too and cheaper) that works well with itching. I use it for mosquito bites. Since rsd the bites get raised and itch like crazy and are on me for weeks. My skin is soooo sensitive I can't rub anything on it so the spray works great and I use it immediately after getting a bite. You may even want to take Benadryl because it will help with the rash, and itching and it will help your rsd too. good luck and let us know if anything helps it.
kathy d

[Indea88]

Thanks for your thoughts and advise, now wondering Teresa if it might be fungus....if it looks like a duck, walks like one and quacks like one it probably is that duck.....you made me think??? my job right now, my hands are in cold water all day. Neuro gave me a script for a skin biopsy, but couldn't get an appointment for a month, can't deal with this another month. Thanks everyone